Explore Our Portfolio
Search a repository of PCORI-funded comparative clinical effectiveness research (CER) studies, as well as projects that seek to encourage engagement in research, disseminate and implement PCORI-funded research findings, and improve the nation's capacity to conduct patient-centered CER, among others. Learn more about the Portfolio |
Displaying 1 - 25 of 30 results
Project Title
Project Status
Project Type
Supporting Families' Treatment Decisions with Evidence on Treatment of Urea Cycle Disorders
Children's National Health System
| District of Columbia
Nicholas Ah Mew, MD
Project Status:
In progress; Recruitment not applicable
Project Type:
Dissemination Project (Limited Competition D&I PFA)
Multi-stakeholder Engagement for Enabling Patient-Driven Research
Accelerated Cure Project for Multiple Sclerosis
| Massachusetts
Robert McBurney, BSc, PhD
Project Status:
Completed
Project Type:
PPRN Limited Competition Award
ABOUT Network - Project COGENT (Customizing Consumer GENerated Tools to Engage Researchers)
University of South Florida
| Florida
Rebecca Sutphen, MD
Project Status:
Completed
Project Type:
PPRN Limited Competition Award
An Open-Source Crowdsourcing Platform for Community-Engaged Research and Dissemination
Board of Trustees of the Leland Stanford Junior University
| California
Mitchell R. Lunn, MD, MAS
Project Status:
Completed
Project Type:
PPRN Limited Competition Award
Diversifying, Expanding and Tracking Patient Engagement in Arthritis Research
Global Healthy Living Foundation
| New York
William B. Nowell, PhD, MSW
Project Status:
Completed
Project Type:
PPRN Limited Competition Award
Coproducing Learning Health System Culture and Process to Accelerate PCOR in the ImproveCareNow Network
Cincinnati Children's Hospital Medical Center
| Ohio
Peter Margolis, MD, PhD
Project Status:
Completed
Project Type:
PPRN Limited Competition Award
Enhancing Engagement, Research Participation, & Collaboration through the IBD Partners Patient Powered Research Network
Crohn's & Colitis Foundation, Inc.
| New York
Angela Dobes, MPH
Project Status:
Completed
Project Type:
PPRN Limited Competition Award
PARTNERS - Enabling Real-time, Personalized Engagement in Research: An App-based Approach
Boston Children's Hospital
| Massachusetts
Marc Natter, MD
Project Status:
Completed
Project Type:
PPRN Limited Competition Award
Bridging the GAP between Patients/Caregivers and COPD Research - The COPD PPRN BRIDGE Project
COPD Foundation, Inc.
| Florida
Cara Pasquale
Project Status:
Completed
Project Type:
PPRN Limited Competition Award
Contract for Advancement of PCORnet Infrastructure: Development of Pilot People-Centered Communities Project - Phase I
Cincinnati Children's Hospital Medical Center
| Ohio
Peter Margolis, MD, PhD
Project Status:
Completed
Project Type:
PCORnet®: Patient Powered Research Networks (PPRN) Phase I
PCORnet Coordinating Center Phase II (Duke University)
Duke University
| North Carolina
Adrian F. Hernandez, MD, MHS and Richard Platt, MD, MSc
Project Status:
Completed
Project Type:
PCORnet® Coordinating Center Phase II
PCORnet Coordinating Center Phase I (Genetic Alliance)
Genetic Alliance, Inc.
| District of Columbia
Sharon Terry, MA
Project Status:
Completed
Project Type:
PCORnet® Coordinating Center Phase II
Phelan-McDermid Syndrome Data Network - Phase I
Phelan-McDermid Syndrome Foundation
| Florida
Megan O'Boyle, BA
Project Status:
PCORnet: Phase I completed; Phase II in progress
Project Type:
PCORnet®: Patient Powered Research Networks (PPRN) Phase I
A Multiple Sclerosis Patient-Powered Research Network - Phase I
Accelerated Cure Project for Multiple Sclerosis
| Massachusetts
Robert McBurney, BSc, PhD
Project Status:
PCORnet: Phase I completed; Phase II in progress
Project Type:
PCORnet®: Patient Powered Research Networks (PPRN) Phase I
The COPD Patient-Powered Research Network - Phase I
COPD Foundation, Inc.
| Florida
Richard Mularski, MD, MS
Project Status:
PCORnet: Phase I completed; Phase II in progress
Project Type:
PCORnet®: Patient Powered Research Networks (PPRN) Phase I
NephCure Kidney Network for Patients with Nephrotic Syndrome - Phase I
Arbor Research Collaborative for Health
| Michigan
Elizabeth Cope, MPH, PhD^
Project Status:
PCORnet: Phase I completed; Phase II in progress
Project Type:
PCORnet®: Patient Powered Research Networks (PPRN) Phase I
Mood Patient-Powered Research Network - Phase I
Massachusetts General Hospital (The General Hospital Corp.)
| Massachusetts
Andrew A. Nierenberg, MD
Project Status:
PCORnet: Phase I completed; Phase II in progress
Project Type:
PCORnet®: Patient Powered Research Networks (PPRN) Phase I
The CCFA Partners Patient-Powered Research Network - Phase I
Crohn's & Colitis Foundation, Inc
| New York
R. Balfour Sartor, MD
Project Status:
PCORnet: Phase I completed; Phase II in progress
Project Type:
PCORnet®: Patient Powered Research Networks (PPRN) Phase I
Community-Engaged Network for All (CENA) - Phase I
Genetic Alliance, Inc.
| District of Columbia
Sharon Terry, MA
Project Status:
PCORnet: Phase I completed; Phase II in progress
Project Type:
PCORnet®: Patient Powered Research Networks (PPRN) Phase I
American BRCA Outcomes and Utilization of Testing Patient-Powered Research Network (ABOUT Network) - Phase I
University of South Florida
| Florida
Rebecca Sutphen, MD
Project Status:
PCORnet: Phase I completed; Phase II in progress
Project Type:
PCORnet®: Patient Powered Research Networks (PPRN) Phase I
PI Patient Research Connection: PI-CONNECT - Phase I
Immune Deficiency Foundation
| Maryland
Kathleen Sullivan, MD, PhD
Project Status:
PCORnet: Phase I completed; Phase II in progress
Project Type:
PCORnet®: Patient Powered Research Networks (PPRN) Phase I
The Vasculitis Patient-Powered Research Network - Phase I
The Trustees of The University of Pennsylvania
| Pennsylvania
Peter Merkel, MD, MPH
Project Status:
PCORnet: Phase I completed; Phase II in progress
Project Type:
PCORnet®: Patient Powered Research Networks (PPRN) Phase I
The Patients, Advocates and Rheumatology Teams Network for Research and Service (PARTNERS) Consortium - Phase I
Duke University
| North Carolina
Laura Schanberg, MD
Project Status:
PCORnet: Phase I completed; Phase II in progress
Project Type:
PCORnet®: Patient Powered Research Networks (PPRN) Phase I
Sleep Apnea Patient Centered Outcomes Network (SAPCON) - Phase I
Brigham and Women's Hospital
| Massachusetts
Susan Redline, MD, MPH
Project Status:
PCORnet: Phase I completed
Project Type:
PCORnet®: Patient Powered Research Networks (PPRN) Phase I
Project Status:
PCORnet: Phase I completed
Project Type:
PCORnet®: Patient Powered Research Networks (PPRN) Phase I