Explore Our Portfolio

Search a repository of PCORI-funded comparative clinical effectiveness research (CER) studies, as well as projects that seek to encourage engagement in research, disseminate and implement PCORI-funded research findings, and improve the nation's capacity to conduct patient-centered CER, among others. Learn more about the Portfolio

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Health Condition Health Conditions These are the broad terms we use to categorize our funded research studies; specific diseases or conditions are included within the appropriate larger category. Note: not all of our funded projects focus on a single disease or condition; some touch on multiple diseases or conditions, research methods, or broader health system interventions. Such projects won’t be listed by a primary disease/condition and so won’t appear if you use this filter tool to find them. View Glossary
Year Awarded Year Awarded The year that funding for the project was approved, or the year the proposal received a notice of award. View Glossary
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Displaying 1 - 22 of 22 results

Project Title
Project Status
Project Type

Supporting Families' Treatment Decisions with Evidence on Treatment of Urea Cycle Disorders

Children's National Health System
| District of Columbia
Nicholas Ah Mew, MD
Project Status:
In progress; Recruitment not applicable
Project Type:
Dissemination Project (Limited Competition D&I PFA)

Multi-stakeholder Engagement for Enabling Patient-Driven Research

Accelerated Cure Project for Multiple Sclerosis
| Massachusetts
Robert McBurney, BSc, PhD
Project Status:
Completed
Project Type:
PPRN Limited Competition Award

ABOUT Network - Project COGENT (Customizing Consumer GENerated Tools to Engage Researchers)

University of South Florida
| Florida
Rebecca Sutphen, MD
Project Status:
Completed
Project Type:
PPRN Limited Competition Award

An Open-Source Crowdsourcing Platform for Community-Engaged Research and Dissemination

Board of Trustees of the Leland Stanford Junior University
| California
Mitchell R. Lunn, MD, MAS
Project Status:
Completed
Project Type:
PPRN Limited Competition Award

Diversifying, Expanding and Tracking Patient Engagement in Arthritis Research

Global Healthy Living Foundation
| New York
William B. Nowell, PhD, MSW
Project Status:
Completed
Project Type:
PPRN Limited Competition Award

Coproducing Learning Health System Culture and Process to Accelerate PCOR in the ImproveCareNow Network

Cincinnati Children's Hospital Medical Center
| Ohio
Peter Margolis, MD, PhD
Project Status:
Completed
Project Type:
PPRN Limited Competition Award

Enhancing Engagement, Research Participation, & Collaboration through the IBD Partners Patient Powered Research Network

Crohn's & Colitis Foundation, Inc.
| New York
Angela Dobes, MPH
Project Status:
Completed
Project Type:
PPRN Limited Competition Award

PARTNERS - Enabling Real-time, Personalized Engagement in Research: An App-based Approach

Boston Children's Hospital
| Massachusetts
Marc Natter, MD
Project Status:
Completed
Project Type:
PPRN Limited Competition Award

Bridging the GAP between Patients/Caregivers and COPD Research - The COPD PPRN BRIDGE Project

COPD Foundation, Inc.
| Florida
Cara Pasquale
Project Status:
Completed
Project Type:
PPRN Limited Competition Award

PCORnet Coordinating Center Phase II (Duke University)

Duke University
| North Carolina
Adrian F. Hernandez, MD, MHS and Richard Platt, MD, MSc
Project Status:
Completed
Project Type:
PCORnet® Coordinating Center Phase II

PCORnet Coordinating Center Phase I (Genetic Alliance)

Genetic Alliance, Inc.
| District of Columbia
Sharon Terry, MA
Project Status:
Completed
Project Type:
PCORnet® Coordinating Center Phase II

PaTH: Towards a Learning Health System in the Mid-Atlantic Region - Phase I

University of Pittsburgh
| Pennsylvania
Rachel Hess, MD, MS
Project Status:
Completed
Project Type:
PCORnet®: Clinical Data Research Networks (CDRN) Phase I

New York City Clinical Data Research Network (NYC-CDRN) - Phase I

Cornell University
| New York
Rainu Kaushal, MD, MPH
Project Status:
Completed
Project Type:
PCORnet®: Clinical Data Research Networks (CDRN) Phase I

The Greater Plains Collaborative (GPC) - Phase I

University of Kansas Medical Center Research Institute
| Kansas
Russ Waitman, PhD
Project Status:
Completed
Project Type:
PCORnet®: Clinical Data Research Networks (CDRN) Phase I

Research Action for Health Network (REACHnet) - Phase I

Louisiana Public Health Institute
| Louisiana
Thomas W. Carton, PhD, MS^
Project Status:
Completed
Project Type:
PCORnet®: Clinical Data Research Networks (CDRN) Phase I

Accelerating Data Value Across a National Community Health Center Network (ADVANCE) - Phase I

Oregon Community Health Information Network, Inc. (OCHIN)
| Oregon
Jennifer E. DeVoe, DPhil, MD
Project Status:
Completed
Project Type:
PCORnet®: Clinical Data Research Networks (CDRN) Phase I

Patient-Oriented Scalable National Network for Effectiveness Research (pSCANNER) - Phase I

University of California, San Diego
| California
Lucila Ohno-Machado, MD, MBA, PhD
Project Status:
Completed
Project Type:
PCORnet®: Clinical Data Research Networks (CDRN) Phase I

The Mid-South Clinical Data Research Network - Phase I

Vanderbilt University Medical Center
| Tennessee
Russell Rothman, MD, MPP
Project Status:
Completed
Project Type:
PCORnet®: Clinical Data Research Networks (CDRN) Phase I

Scalable Collaborative Infrastructure for a Learning Healthcare System (SCILHS) - Phase I

Harvard University Medical School
| Massachusetts
Kenneth D. Mandl, MD, MPH
Project Status:
Completed
Project Type:
PCORnet®: Clinical Data Research Networks (CDRN) Phase I

A National Pediatric Learning Health System (PEDSnet) - Phase I

Children's Hospital of Philadelphia
| Pennsylvania
Christopher B. Forrest, MD, PhD
Project Status:
Completed
Project Type:
PCORnet®: Clinical Data Research Networks (CDRN) Phase I

Chicago Area Patient-Centered Outcomes Research Network (CAPriCORN) - Phase I

The Chicago Community Trust
| Illinois
Terry Mazany, MA, MBA
Project Status:
Completed
Project Type:
PCORnet®: Clinical Data Research Networks (CDRN) Phase I

Kaiser Permanente & Strategic Partners Patient Outcomes Research To Advance Learning (PORTAL) Network - Phase I

Kaiser Foundation Research Institute
| California
Elizabeth A. McGlynn, PhD
Project Status:
Completed
Project Type:
PCORnet®: Clinical Data Research Networks (CDRN) Phase I

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