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State State The state where the project originates, or where the primary institution or organization is located. View Glossary
Health Condition Health Conditions These are the broad terms we use to categorize our funded research studies; specific diseases or conditions are included within the appropriate larger category. Note: not all of our funded projects focus on a single disease or condition; some touch on multiple diseases or conditions, research methods, or broader health system interventions. Such projects won’t be listed by a primary disease/condition and so won’t appear if you use this filter tool to find them. View Glossary
Year Awarded Year Awarded The year the PCORI Board of Governors approved funding for the project or the year the proposal received a notice of award. View Glossary
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Displaying 1 - 22 of 22 results

Project Title
Project Status
Project Type

Supporting Families' Treatment Decisions with Evidence on Treatment of Urea Cycle Disorders

Children's National Health System
| District of Columbia
Nicholas Ah Mew, MD
Project Status:
In progress; Recruitment not applicable
Project Type:
Dissemination Project (Limited Competition D&I PFA)

Multi-stakeholder Engagement for Enabling Patient-Driven Research

Accelerated Cure Project for Multiple Sclerosis
| Massachusetts
Robert McBurney, BSc, PhD
Project Status:
Project Type:
PPRN Limited Competition Award
Project Status:
Project Type:
PPRN Limited Competition Award

An Open-Source Crowdsourcing Platform for Community-Engaged Research and Dissemination

Board of Trustees of the Leland Stanford Junior University
| California
Mitchell R. Lunn, MD, MAS
Project Status:
Project Type:
PPRN Limited Competition Award

Diversifying, Expanding and Tracking Patient Engagement in Arthritis Research

Global Healthy Living Foundation
| New York
William B. Nowell, PhD, MSW
Project Status:
Project Type:
PPRN Limited Competition Award

Coproducing Learning Health System Culture and Process to Accelerate PCOR in the ImproveCareNow Network

Cincinnati Children's Hospital Medical Center
| Ohio
Peter Margolis, MD, PhD
Project Status:
Project Type:
PPRN Limited Competition Award
Project Status:
Project Type:
PPRN Limited Competition Award
Project Status:
Project Type:
PPRN Limited Competition Award
Project Status:
Project Type:
PPRN Limited Competition Award
Has Results

The Greater Plains Collaborative

University of Kansas Medical Center
| Kansas
Russ Waitman, PhD
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
PCORnet: Clinical Data Research Networks (CDRN) Phase II
Has Results

OneFlorida Clinical Research Consortium

University of Florida
| Florida
Elizabeth Ann Shenkman, PhD
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
PCORnet: Clinical Data Research Networks (CDRN) Phase II
Has Results

Mid-South Clinical Data Research Network

Vanderbilt University Medical Center
| Tennessee
Russell Rothman, MD, MPP
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
PCORnet: Clinical Data Research Networks (CDRN) Phase II
Has Results

The Patient-Centered Network of Learning Health Systems (LHSNet)

Mayo Clinic
| Minnesota
Veronique L. Roger, MD^
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
PCORnet: Clinical Data Research Networks (CDRN) Phase II
Has Results

patient-centered SCAlable National Network for Effectiveness Research (pSCANNER)

University of California, San Diego
| California
Lucila Ohno-Machado, MD, MBA, PhD
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
PCORnet: Clinical Data Research Networks (CDRN) Phase II
Has Results

PaTH Towards a Learning Health System (PaTH)

University of Pittsburgh
| Pennsylvania
Kathleen McTigue, MD, MPH^
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
PCORnet: Clinical Data Research Networks (CDRN) Phase II
Has Results

Patient Outcomes Research To Advance Learning (PORTAL)

Kaiser Foundation Research Institute
| California
Elizabeth A. McGlynn, PhD
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
PCORnet: Clinical Data Research Networks (CDRN) Phase II
Has Results

Chicago Area Patient-Centered Outcomes Research Network (CAPriCORN)

Northwestern University
| Illinois
Abel Kho, MD^
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
PCORnet: Clinical Data Research Networks (CDRN) Phase II
Has Results

Accessible Research Commons for Health (ARCH)

President and Fellows of Harvard College
| Massachusetts
Kenneth Mandl, MD, MPH
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
PCORnet: Clinical Data Research Networks (CDRN) Phase II
Has Results

New York City Clinical Data Research Network (NYC-CDRN)

Joan & Sanford I. Weill Medical College of Cornell University
| New York
Rainu Kaushal, MD, MPH
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
PCORnet: Clinical Data Research Networks (CDRN) Phase II
Has Results

PEDSnet

Children's Hospital of Philadelphia
| Pennsylvania
Christopher B. Forrest, MD, PhD
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
PCORnet: Clinical Data Research Networks (CDRN) Phase II
Has Results

Accelerating Data Value Across a National Community Health Center Network (ADVANCE)

Oregon Community Health Information Network (OCHIN), Inc.
| Oregon
Jon Puro, MPA, MHA^
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
PCORnet: Clinical Data Research Networks (CDRN) Phase II
Has Results

Research Action for Health Network (REACHnet)

Louisiana Public Health Institute
| Louisiana
Thomas W. Carton, PhD, MS
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
PCORnet: Clinical Data Research Networks (CDRN) Phase II

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