Explore Our Portfolio

Search a repository of PCORI-funded comparative clinical effectiveness research (CER) studies, as well as projects that seek to encourage engagement in research, disseminate and implement PCORI-funded research findings, and improve the nation's capacity to conduct patient-centered CER, among others. Learn more about the Portfolio

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Health Condition Health Conditions These are the broad terms we use to categorize our funded research studies; specific diseases or conditions are included within the appropriate larger category. Note: not all of our funded projects focus on a single disease or condition; some touch on multiple diseases or conditions, research methods, or broader health system interventions. Such projects won’t be listed by a primary disease/condition and so won’t appear if you use this filter tool to find them. View Glossary
Year Awarded Year Awarded The year that funding for the project was approved, or the year the proposal received a notice of award. View Glossary
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Displaying 1 - 17 of 17 results

Project Title
Project Status
Project Type

Supporting Families' Treatment Decisions with Evidence on Treatment of Urea Cycle Disorders

Children's National Health System
| District of Columbia
Nicholas Ah Mew, MD
Project Status:
In progress; Recruitment not applicable
Project Type:
Dissemination Project (Limited Competition D&I PFA)

Engagement Coordinating Center for PCORnet

AcademyHealth
| District of Columbia
Elizabeth Cope, PhD, MPH
Project Status:
Completed
Project Type:
Research Infrastructure

An Open-Source Crowdsourcing Platform for Community-Engaged Research and Dissemination

Board of Trustees of the Leland Stanford Junior University
| California
Mitchell R. Lunn, MD, MAS
Project Status:
Completed
Project Type:
PPRN Limited Competition Award
Project Status:
In progress; Recruitment not applicable
Project Type:
Research Infrastructure

Natural Experiments Coordinating Center

Regents of the University of California, Los Angeles
| California
Kenrik Duru, MD, MSHS
Project Status:
Awarded; In progress
Project Type:
Research Infrastructure

PCORnet Coordinating Center Phase II (Genetic Alliance)

Genetic Alliance, Inc.
| District of Columbia
Sharon Terry, MA
Project Status:
Completed
Project Type:
Research Infrastructure

PCORnet Coordinating Center Phase I (Genetic Alliance)

Genetic Alliance, Inc.
| District of Columbia
Sharon Terry, MA
Project Status:
Completed
Project Type:
PCORnet® Coordinating Center Phase II
Has Results

Community and Patient Partnered Research Network (CPPRN)

University of California, Los Angeles
| California
Kenneth Wells, MD, MPH
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
PCORnet®: Patient Powered Research Networks (PPRN) Phase II
Has Results

Community Engaged Network for All (CENA)

Genetic Alliance, Inc.
| District of Columbia
Sharon Terry, MA
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
PCORnet®: Patient Powered Research Networks (PPRN) Phase II
Has Results

The Health eHeart Alliance

University of California, San Francisco
| California
Mark Pletcher, MD, MPH
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
PCORnet®: Patient Powered Research Networks (PPRN) Phase II
Has Results

PRIDEnet: A Participant-Powered Research Network of Sexual and Gender Minorities

University of California, San Francisco
| California
Mitchell R. Lunn, MD
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
PCORnet®: Patient Powered Research Networks (PPRN) Phase II
Has Results

patient-centered SCAlable National Network for Effectiveness Research (pSCANNER)

University of California, San Diego
| California
Lucila Ohno-Machado, MD, MBA, PhD
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
PCORnet®: Clinical Data Research Networks (CDRN) Phase II
Has Results

Patient Outcomes Research To Advance Learning (PORTAL)

Kaiser Foundation Research Institute
| California
Elizabeth A. McGlynn, PhD
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
PCORnet®: Clinical Data Research Networks (CDRN) Phase II

Community-Engaged Network for All (CENA) - Phase I

Genetic Alliance, Inc.
| District of Columbia
Sharon Terry, MA
Project Status:
PCORnet: Phase I completed; Phase II in progress
Project Type:
PCORnet®: Patient Powered Research Networks (PPRN) Phase I

The Health eHeart Alliance - Phase I

University of California San Francisco
| California
Mark Pletcher, MD, MPH
Project Status:
PCORnet: Phase I completed; Phase II in progress
Project Type:
PCORnet®: Patient Powered Research Networks (PPRN) Phase I

Patient-Oriented Scalable National Network for Effectiveness Research (pSCANNER) - Phase I

University of California, San Diego
| California
Lucila Ohno-Machado, MD, MBA, PhD
Project Status:
Completed
Project Type:
PCORnet®: Clinical Data Research Networks (CDRN) Phase I

Kaiser Permanente & Strategic Partners Patient Outcomes Research To Advance Learning (PORTAL) Network - Phase I

Kaiser Foundation Research Institute
| California
Elizabeth A. McGlynn, PhD
Project Status:
Completed
Project Type:
PCORnet®: Clinical Data Research Networks (CDRN) Phase I

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