Explore Our Portfolio

Search a repository of PCORI-funded comparative clinical effectiveness research (CER) studies, as well as projects that seek to encourage engagement in research, disseminate and implement PCORI-funded research findings, and improve the nation's capacity to conduct patient-centered CER, among others. Learn more about the Portfolio

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Health Condition Health Conditions These are the broad terms we use to categorize our funded research studies; specific diseases or conditions are included within the appropriate larger category. Note: not all of our funded projects focus on a single disease or condition; some touch on multiple diseases or conditions, research methods, or broader health system interventions. Such projects won’t be listed by a primary disease/condition and so won’t appear if you use this filter tool to find them. View Glossary
Year Awarded Year Awarded The year that funding for the project was approved, or the year the proposal received a notice of award. View Glossary
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Displaying 1 - 23 of 23 results

Project Title
Project Status
Project Type

Coordinating Center: Communications

Duke University, DCRI
| North Carolina
Adrian F. Hernandez, MD, MHS
Project Status:
Awarded; In progress
Project Type:
Research Infrastructure, PCORnet® Coordinating Center Phase 3

Coordinating Center: Common Data Model, Data Characterization, and Privacy Preserving Record Linkage

Duke University, DCRI
| North Carolina
Adrian F. Hernandez, MD, MHS
Project Status:
Awarded; In progress
Project Type:
Research Infrastructure, PCORnet® Coordinating Center Phase 3

Supporting Families' Treatment Decisions with Evidence on Treatment of Urea Cycle Disorders

Children's National Health System
| District of Columbia
Nicholas Ah Mew, MD
Project Status:
In progress; Recruitment not applicable
Project Type:
Dissemination Project (Limited Competition D&I PFA)

Engagement Coordinating Center for PCORnet

AcademyHealth
| District of Columbia
Elizabeth Cope, PhD, MPH
Project Status:
Completed
Project Type:
Research Infrastructure

Master Infrastructure Funding Contract for Advancement and Sustainability of PCORnet Infrastructure: Support of Infrastructure Projects of People-Centered Research Foundation

People-Centered Research Foundation
| District of Columbia
Donna Cryer
Project Status:
In progress; Recruitment not applicable
Project Type:
Research Infrastructure

Advancing Reproductive Health Wellness Between Patients with Cystic Fibrosis, Their Caregivers, Healthcare Providers and Researchers - Tier II

University of Washington Department of Family Medicine
| Washington
Emily M. Godfrey MD, MPH, FAAFP
Project Status:
Completed
Project Type:
Pipeline to Proposal, Tier II

Keep on Movin' - Building a Patient/Caregiver, Stakeholder, and Researcher Partnership to Promote Physical Activity (PA) Access and Participation of Children Who Use Assistive Mobility Devices (AMD) - Tier II

N/A
| Washington
Cheryl Kerfeld, PT, PhD
Project Status:
Completed
Project Type:
Pipeline to Proposal, Tier II

Initiating Discussions to Enhance Physical Activity Promotion Services for Individuals with PD (IDEAS for PD) - Tier II

University of Washington
| Washington
Sujata Pradhan PT, PhD
Project Status:
Completed
Project Type:
Pipeline to Proposal, Tier II

Building Networks for Comparative Research with Youth Caregivers and Older Adults - Tier II

University of North Carolina - Chapel Hill
| North Carolina
Elizabeth Olson, PhD, MA
Project Status:
Completed
Project Type:
Pipeline to Proposal, Tier II

Building the Foundation for Community-Led Research to Eliminate LGBT Cancer Disparities - Tier II

The George Washington University (GW) Cancer Institute
| District of Columbia
Mandi Pratt-Chapman, MA
Project Status:
Completed
Project Type:
Pipeline to Proposal, Tier II

Fostering Community Based Research Priorities for mHealth Diabetes and Hypertension Self-Management - Tier II

EthosExcel
| North Carolina
Brenda D. Jamerson, PharmD
Project Status:
Completed
Project Type:
Pipeline to Proposal, Tier II

Building Capacity and Reducing Barriers to the Inclusion of the Underserved Black Youth and Families for Behavioral and Mental Health Patient-Centered Outcomes Research - Tier II

Georgetown University
| District of Columbia
Alfiee Breland-Noble, PhD, MHSc
Project Status:
Completed
Project Type:
Pipeline to Proposal, Tier II

PCORnet Coordinating Center Phase II (Genetic Alliance)

Genetic Alliance, Inc.
| District of Columbia
Sharon Terry, MA
Project Status:
Completed
Project Type:
Research Infrastructure

PCORnet Coordinating Center Phase II (Duke University)

Duke University
| North Carolina
Adrian F. Hernandez, MD, MHS and Richard Platt, MD, MSc
Project Status:
Completed
Project Type:
PCORnet® Coordinating Center Phase II

PCORnet Coordinating Center Phase I (Genetic Alliance)

Genetic Alliance, Inc.
| District of Columbia
Sharon Terry, MA
Project Status:
Completed
Project Type:
PCORnet® Coordinating Center Phase II
Has Results

Community Engaged Network for All (CENA)

Genetic Alliance, Inc.
| District of Columbia
Sharon Terry, MA
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
PCORnet®: Patient Powered Research Networks (PPRN) Phase II
Has Results

Patients, Advocates, and Rheumatology Teams for Research and Service (PARTNERS)

Duke University
| North Carolina
Laura Schanberg, MD
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
PCORnet®: Patient Powered Research Networks (PPRN) Phase II
Has Results

IBD Partners: A Participant-Powered Research Network of Patients with Crohn's Disease and Ulcerative Colitis

The University of North Carolina at Chapel Hill
| North Carolina
Michael Kappelman, MD, MPH^
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
PCORnet®: Patient Powered Research Networks (PPRN) Phase II

Promoting Patient-Centered Research in the Puget Sound Asthma Coalition - Tier II

Washington State University College of Nursing
| Washington
Julie Postma, PhD, BSN
Project Status:
Completed
Project Type:
Pipeline to Proposal, Tier II

Improving Diabetes Education and Management in Schools: A Community Project - Tier II

Seattle Children's Hospital
| Washington
Joyce Yi-Frazier, PhD
Project Status:
Completed
Project Type:
Pipeline to Proposal, Tier II

Improving Early Detection of Stomach Cancer Among Asian Pacific Americans - Tier II

Korean Women's Association
| Washington
Suzanne Pak, BS
Project Status:
Completed
Project Type:
Pipeline to Proposal, Tier II

Community-Engaged Network for All (CENA) - Phase I

Genetic Alliance, Inc.
| District of Columbia
Sharon Terry, MA
Project Status:
PCORnet: Phase I completed; Phase II in progress
Project Type:
PCORnet®: Patient Powered Research Networks (PPRN) Phase I

The Patients, Advocates and Rheumatology Teams Network for Research and Service (PARTNERS) Consortium - Phase I

Duke University
| North Carolina
Laura Schanberg, MD
Project Status:
PCORnet: Phase I completed; Phase II in progress
Project Type:
PCORnet®: Patient Powered Research Networks (PPRN) Phase I

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