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Health Condition Health Conditions These are the broad terms we use to categorize our funded research studies; specific diseases or conditions are included within the appropriate larger category. Note: not all of our funded projects focus on a single disease or condition; some touch on multiple diseases or conditions, research methods, or broader health system interventions. Such projects won’t be listed by a primary disease/condition and so won’t appear if you use this filter tool to find them. View Glossary
Year Awarded Year Awarded The year that funding for the project was approved, or the year the proposal received a notice of award. View Glossary
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Displaying 1 - 17 of 17 results

Project Title
Project Status
Project Type

Coordinating Center: Communications

Duke University, DCRI
| North Carolina
Adrian F. Hernandez, MD, MHS
Project Status:
Awarded; In progress
Project Type:
Research Infrastructure

Coordinating Center: Common Data Model, Data Characterization, and Privacy Preserving Record Linkage

Duke University, DCRI
| North Carolina
Adrian F. Hernandez, MD, MHS
Project Status:
Awarded; In progress
Project Type:
Research Infrastructure

Supporting Families' Treatment Decisions with Evidence on Treatment of Urea Cycle Disorders

Children's National Health System
| District of Columbia
Nicholas Ah Mew, MD
Project Status:
In progress; Recruitment not applicable
Project Type:
Dissemination Project (Limited Competition D&I PFA)

Engagement Coordinating Center for PCORnet

AcademyHealth
| District of Columbia
Elizabeth Cope, PhD, MPH
Project Status:
Awarded; In progress
Project Type:
Research Infrastructure
Project Status:
In progress; Recruitment not applicable
Project Type:
Research Infrastructure

Building Networks for Comparative Research with Youth Caregivers and Older Adults - Tier II

University of North Carolina - Chapel Hill
| North Carolina
Elizabeth Olson, PhD, MA
Project Status:
Project Type:
Tier II

Building the Foundation for Community-Led Research to Eliminate LGBT Cancer Disparities - Tier II

The George Washington University (GW) Cancer Institute
| District of Columbia
Mandi Pratt-Chapman, MA
Project Status:
Project Type:
Tier II
Project Status:
Project Type:
Tier II

PCORnet Coordinating Center Phase II (Genetic Alliance)

Genetic Alliance, Inc.
| District of Columbia
Sharon Terry, MA
Project Status:
In progress; Recruitment not applicable
Project Type:
Research Infrastructure

PCORnet Coordinating Center Phase II (Duke University)

Duke University
| North Carolina
Adrian F. Hernandez, MD, MHS and Richard Platt, MD, MSc
Project Status:
In progress; Recruitment not applicable
Project Type:
PCORnet® Coordinating Center Phase II

PCORnet Coordinating Center Phase I (Genetic Alliance)

Genetic Alliance, Inc.
| District of Columbia
Sharon Terry, MA
Project Status:
Project Type:
PCORnet® Coordinating Center Phase II
Has Results

Community Engaged Network for All (CENA)

Genetic Alliance, Inc.
| District of Columbia
Sharon Terry, MA
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
PCORnet®: Patient Powered Research Networks (PPRN) Phase II
Has Results
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
PCORnet®: Patient Powered Research Networks (PPRN) Phase II
Has Results

IBD Partners: A Participant-Powered Research Network of Patients with Crohn's Disease and Ulcerative Colitis

The University of North Carolina at Chapel Hill
| North Carolina
Michael Kappelman, MD, MPH^
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
PCORnet®: Patient Powered Research Networks (PPRN) Phase II

Community-Engaged Network for All (CENA) - Phase I

Genetic Alliance, Inc.
| District of Columbia
Sharon Terry, MA
Project Status:
PCORnet: Phase I completed; Phase II in progress
Project Type:
PCORnet®: Patient Powered Research Networks (PPRN) Phase I
Project Status:
PCORnet: Phase I completed; Phase II in progress
Project Type:
PCORnet®: Patient Powered Research Networks (PPRN) Phase I

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