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Health Condition Health Conditions These are the broad terms we use to categorize our funded research studies; specific diseases or conditions are included within the appropriate larger category. Note: not all of our funded projects focus on a single disease or condition; some touch on multiple diseases or conditions, research methods, or broader health system interventions. Such projects won’t be listed by a primary disease/condition and so won’t appear if you use this filter tool to find them. View Glossary
Year Awarded Year Awarded The year the PCORI Board of Governors approved funding for the project or the year the proposal received a notice of award. View Glossary
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Displaying 1 - 25 of 26 results

Project Title
Project Status
Project Type
Project Status:
In progress; Recruitment not applicable
Project Type:
Implementation Project (Implementation of Effective Shared Decision Making Approaches PFA)

Putting a Diabetes Risk Prediction Tool into Practice to Support Shared Clinical Decision Making

The Regents of the University of California, Los Angeles
| California
O. Kenrik Duru, MD, MS
Project Status:
In progress; Recruitment not applicable
Project Type:
Implementation Project (Implementation of Effective Shared Decision Making Approaches PFA)

Shared Decision Making for Weight Loss Surgery in Patients with Severe Obesity

Kaiser Foundation Health Plan of Washington
| Washington
David Arterburn, MD, MPH
Project Status:
In progress; Recruitment not applicable
Project Type:
Implementation Project (Implementation of Effective Shared Decision Making Approaches PFA)

Improving Shared Decision Making for Men with Prostate Cancer That Has Not Spread

Regents of the University of California, Los Angeles
| California
Christopher Saigal, MD, MPH
Project Status:
In progress; Recruitment not applicable
Project Type:
Implementation Project (Implementation of Effective Shared Decision Making Approaches PFA)

Expanding Use of a Decision Aid to Help People with Lupus Nephritis Make Decisions about Treatment

University of Alabama at Birmingham
| Alabama
Jasvinder Singh, MD, MPH
Project Status:
In progress; Recruitment not applicable
Project Type:
Implementation Project (Implementation of Effective Shared Decision Making Approaches PFA)

Using a Decision Aid to Help Patients Make Decisions about Fibroid Treatment

Trustees of Dartmouth College
| New Hampshire
Glyn Elwyn, MD, PhD, FRCGP, MSc, MB BCh
Project Status:
In progress; Recruitment not applicable
Project Type:
Implementation Project (Implementation of Effective Shared Decision Making Approaches PFA)

Expanding a Shared Decision Making Program for Patients Considering LVAD Treatment

University of Colorado Denver
| Colorado
Daniel D. Matlock, MD, MPH
Project Status:
In progress; Recruitment not applicable
Project Type:
Implementation Project (Implementation of Effective Shared Decision Making Approaches PFA)
Project Status:
Awarded; In progress
Project Type:
PCORnet: Patient Powered Research Networks (PPRN) Phase I

Mood Patient-Powered Research Network - Phase I

Massachusetts General Hospital (The General Hospital Corp.)
| Massachusetts
Andrew A. Nierenberg, MD
Project Status:
PCORnet: Phase I completed; Phase II in progress
Project Type:
PCORnet: Patient Powered Research Networks (PPRN) Phase I

Phelan-McDermid Syndrome Data Network - Phase I

Phelan-McDermid Syndrome Foundation
| Florida
Megan O'Boyle, BA
Project Status:
PCORnet: Phase I completed; Phase II in progress
Project Type:
PCORnet: Patient Powered Research Networks (PPRN) Phase I

A Multiple Sclerosis Patient-Powered Research Network - Phase I

Accelerated Cure Project for Multiple Sclerosis
| Massachusetts
Robert McBurney, BSc, PhD
Project Status:
PCORnet: Phase I completed; Phase II in progress
Project Type:
PCORnet: Patient Powered Research Networks (PPRN) Phase I

NephCure Kidney Network for Patients with Nephrotic Syndrome - Phase I

Arbor Research Collaborative for Health
| Michigan
Elizabeth Cope, MPH, PhD^
Project Status:
PCORnet: Phase I completed; Phase II in progress
Project Type:
PCORnet: Patient Powered Research Networks (PPRN) Phase I

The COPD Patient-Powered Research Network - Phase I

COPD Foundation, Inc.
| Florida
Richard Mularski, MD, MS
Project Status:
PCORnet: Phase I completed; Phase II in progress
Project Type:
PCORnet: Patient Powered Research Networks (PPRN) Phase I

The CCFA Partners Patient-Powered Research Network - Phase I

Crohn's & Colitis Foundation, Inc
| New York
R. Balfour Sartor, MD
Project Status:
PCORnet: Phase I completed; Phase II in progress
Project Type:
PCORnet: Patient Powered Research Networks (PPRN) Phase I

Community-Engaged Network for All (CENA) - Phase I

Genetic Alliance, Inc.
| District of Columbia
Sharon Terry, MA
Project Status:
PCORnet: Phase I completed; Phase II in progress
Project Type:
PCORnet: Patient Powered Research Networks (PPRN) Phase I

PI Patient Research Connection: PI-CONNECT - Phase I

Immune Deficiency Foundation
| Maryland
Kathleen Sullivan, MD, PhD
Project Status:
PCORnet: Phase I completed; Phase II in progress
Project Type:
PCORnet: Patient Powered Research Networks (PPRN) Phase I

The Vasculitis Patient-Powered Research Network - Phase I

The Trustees of The University of Pennsylvania
| Pennsylvania
Peter Merkel, MD, MPH
Project Status:
PCORnet: Phase I completed; Phase II in progress
Project Type:
PCORnet: Patient Powered Research Networks (PPRN) Phase I
Project Status:
PCORnet: Phase I completed; Phase II in progress
Project Type:
PCORnet: Patient Powered Research Networks (PPRN) Phase I
Project Status:
PCORnet: Phase I completed; Phase II in progress
Project Type:
PCORnet: Patient Powered Research Networks (PPRN) Phase I

ALD Connect - Phase I

ALD Connect, Inc.
| Massachusetts
Florian Eichler, MD
Project Status:
PCORnet: Phase I completed
Project Type:
PCORnet: Patient Powered Research Networks (PPRN) Phase I

Sleep Apnea Patient Centered Outcomes Network (SAPCON) - Phase I

Brigham and Women's Hospital
| Massachusetts
Susan Redline, MD, MPH
Project Status:
PCORnet: Phase I completed
Project Type:
PCORnet: Patient Powered Research Networks (PPRN) Phase I

ImproveCareNow: A Learning Health System for Children with Crohn's Disease and Ulcerative Colitis - Phase I

Cincinnati Children's Hospital Medical Center
| Ohio
Peter Margolis, MD, PhD
Project Status:
PCORnet: Phase I completed; Phase II in progress
Project Type:
PCORnet: Patient Powered Research Networks (PPRN) Phase I

Rare Epilepsy Network (REN) - Phase I

Epilepsy Foundation
| Maryland
Janice M. Buelow, PhD, RN
Project Status:
PCORnet: Phase I completed; Phase II in progress
Project Type:
PCORnet: Patient Powered Research Networks (PPRN) Phase I
Project Status:
PCORnet: Phase I completed; Phase II in progress
Project Type:
PCORnet: Patient Powered Research Networks (PPRN) Phase I

The DuchenneConnect Patient-Report Registry Infrastructure Project - Phase I

Parent Project Muscular Dystrophy
| New Jersey
Holly Peay, MS
Project Status:
PCORnet: Phase I completed; Phase II in progress
Project Type:
PCORnet: Patient Powered Research Networks (PPRN) Phase I

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