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Displaying 1 - 8 of 8 results

Project Title
Project Status
Project Type
Has Results

American BRCA Outcomes and Utilization of Testing: A Participant-Powered Research Network

University of South Florida
| Florida
Rebecca Sutphen, MD
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
PCORnet: Patient Powered Research Networks (PPRN) Phase II
Has Results

National Alzheimer's & Dementia Patient- & Caregiver-Powered Research Network

Mayo Clinic
| Minnesota
Ronald Petersen, MD, PhD^
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
PCORnet: Patient Powered Research Networks (PPRN) Phase II
Has Results

Patients, Advocates, and Rheumatology Teams for Research and Service (PARTNERS)

Duke University
| North Carolina
Laura Schanberg, MD
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
PCORnet: Patient Powered Research Networks (PPRN) Phase II
Has Results

DuchenneConnect Network

Parent Project Muscular Dystrophy
| New Jersey
Abby Bronson, MBA^
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
PCORnet: Patient Powered Research Networks (PPRN) Phase II
Has Results

Phelan-McDermid Syndrome Data Network (PMS_DN)

Phelan-McDermid Syndrome Foundation
| Florida
Megan O'Boyle, BA
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
PCORnet: Patient Powered Research Networks (PPRN) Phase II
Has Results

iConquerMS: A Participant-Powered Research Network

Accelerated Cure Project for Multiple Sclerosis
| Massachusetts
Robert McBurney, BSc, PhD
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
PCORnet: Patient Powered Research Networks (PPRN) Phase II
Has Results

PRIDEnet: A Participant-Powered Research Network of Sexual and Gender Minorities

University of California, San Francisco
| California
Mitchell R. Lunn, MD
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
PCORnet: Patient Powered Research Networks (PPRN) Phase II
Has Results

ArthritisPower (ARthritis Partnership with Comparative Effectiveness Researchers)

Global Healthy Living Foundation
| New York
Seth Ginsberg, BS
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
PCORnet: Patient Powered Research Networks (PPRN) Phase II

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