Explore Our Portfolio
Displaying 1 - 25 of 26 results
Project Title
Project Status
Project Type
Comparing Two Ways for Parents of Youth with Intellectual and Developmental Disabilities to Build Their Advocacy Skills
The University of North Carolina at Chapel Hill
| North Carolina
Kathleen Thomas, MPH, PHD
Project Status:
In progress; Recruiting
Project Type:
Research
Supporting Families' Treatment Decisions with Evidence on Treatment of Urea Cycle Disorders
Children's National Health System
| District of Columbia
Nicholas Ah Mew, MD
Project Status:
In progress; Recruitment not applicable
Project Type:
Dissemination Project (Limited Competition D&I PFA)
Has Results
Does Personalized Risk Information Help Patients and Doctors Make Informed Decisions about Colorectal Cancer Screening?
Indiana University
| Indiana
Peter H. Schwartz, MD, PhD, MA
Project Status:
In PCORI Peer-Review Process
Project Type:
Research
Expanding Implementation of Family Problem-Solving Therapy for Teens with Traumatic Brain Injury
Cincinnati Children's Hospital Medical Center
| Ohio
Shari L. Wade, PhD
Project Status:
In progress; Recruitment not applicable
Project Type:
Implementation Project (Limited Competition D&I PFA)
Has Results
Comparing Two Ways to Help Patients with Sickle Cell Disease Manage Pain -- The CaRISMA Study
University of Pittsburgh
| Pennsylvania
Charles Jonassaint, PhD, MHS
Project Status:
In progress; Data collected
Project Type:
Research, Research Conducted Using PCORnet®
Emerging Technologies and Therapeutics Reports: Landscape Review and Evidence Map of Gene Therapy
RAND Corporation
| California
Project Status:
Completed
Project Type:
Other Evidence Products
Comparing Three Ways to Identify and Provide Care to Patients at Risk for Hereditary Cancer
Kaiser Foundation Research Institute
| California
Douglas Corley, MD, PhD
Project Status:
In progress; Recruiting
Project Type:
Research, Research Conducted Using PCORnet®
Comparing Home- Versus Clinic-Based Phototherapy for the Treatment of Psoriasis -- The LITE Study
University of Pennsylvania
| Pennsylvania
Joel Mitchell Gelfand, MD, MS
Project Status:
In progress; Data collected
Project Type:
Research
Community Health Worker and Mobile Health Programs to Help Young Adults with Sickle Cell Disease Transition to Using Adult Healthcare Services -- The COMETS Study
The Childrens' Hospital of Philadelphia
| Pennsylvania
David M. Rubin, MD, MS
Project Status:
In progress; Enrollment complete
Project Type:
Research
Comparing Transitional Care for Teens and Young Adults with Sickle Cell Disease with and without Peer Mentoring
Carolinas Medical Center
| North Carolina
Payal Desai
Project Status:
In PCORI Peer-Review Process
Project Type:
Research
Has Results
Comparing Ways to Help Parents of Children with Sickle Cell Disease Decide on Treatment -- The ENGAGE HU Study
Cincinnati Children's Hospital Medical Center
| Ohio
Lori E. Crosby, PsyD
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
Research
Comparing Strategies to Help People with Traumatic Brain Injury Continue Recovering after a Hospital Stay -- The BRITE Study
University of Washington
| Washington
Jeanne Hoffman, PhD
Project Status:
In PCORI Peer-Review Process
Project Type:
Research
Has Results
Comparing Ways to Identify Sleep Apnea in People with Traumatic Brain Injury during Inpatient Rehabilitation
Tampa VA Research and Education Foundation
| Florida
Risa Nakase-Richardson, PhD, FACRM, FNAN
Project Status:
Completed; PCORI Public and Professional Abstracts, and Final Research Report Posted
Project Type:
Research
Has Results
Does a Web-Based Platform for Caregivers Help People with Down Syndrome Get Recommended Health Services?
Massachusetts General Hospital
| Massachusetts
Brian Skotko, MD, MPP
Project Status:
Completed; PCORI Public and Professional Abstracts, and Final Research Report Posted
Project Type:
Research
Has Results
Comparing Treatment Options for Urea Cycle Disorders
Children's Research Institute
| District of Columbia
Nicholas Ah Mew, MD^
Project Status:
Completed; PCORI Public and Professional Abstracts, and Final Research Report Posted
Project Type:
Research
Has Results
Developmental Outcomes in Children with Duarte Galactosemia
Emory University
| Georgia
Judith L. Fridovich-Keil, PhD
Project Status:
Completed; PCORI Public and Professional Abstracts, and Final Research Report Posted
Project Type:
Research
Has Results
Comparing Pain Management for Sickle Cell Disease Crises in Emergency Rooms and Infusion Centers
Johns Hopkins University
| Maryland
Sophie Lanzkron, MD, MHS
Project Status:
Completed; PCORI Public and Professional Abstracts, and Final Research Report Posted
Project Type:
Research
Has Results
Evaluating Two Rehab Approaches for Patients with Traumatic Brain Injury
Ohio State University College of Medicine
| Ohio
Jennifer A. Bogner, PhD
Project Status:
Completed; PCORI Public and Professional Abstracts, and Final Research Report Posted
Project Type:
Research
Has Results
Comparing Early Rehab Therapy with Usual Care for Children with Acute Brain Injuries
University of Pittsburgh at Pittsburgh
| Pennsylvania
Ericka Linn Fink, MD, MS
Project Status:
Completed; PCORI Public and Professional Abstracts, and Final Research Report Posted
Project Type:
Research
Has Results
Evaluating the Impact of a User-Friendly Report of Genetic Testing Results for Parents of Children with Genetic Disorders
Weis Center For Research-Geisinger Clinic
| Pennsylvania
Marc S. Williams, MD
Project Status:
Completed; PCORI Public and Professional Abstracts, and Final Research Report Posted
Project Type:
Research
Has Results
Is it Possible to Collect Patient-Reported Data in Inpatient Rehabilitation Facilities?
Shirley Ryan AbilityLab^
| Illinois
Allen Heinemann, PhD
Project Status:
Completed; PCORI Public and Professional Abstracts, and Final Research Report Posted
Project Type:
Research
Has Results
Comparing Online and In-Person Family Therapy for Teens with Traumatic Brain Injury and Their Parents
Cincinnati Children's Hospital Medical Center
| Ohio
Shari L. Wade, PhD
Project Status:
Completed; PCORI Public and Professional Abstracts, and Final Research Report Posted
Project Type:
Research
Has Results
An Online Decision Aid to Help Patients and Caregivers Decide on Treatments for Sickle Cell Disease
Emory University^
| Georgia
Lakshmanan Krishnamurti, MD
Project Status:
Completed; PCORI Public and Professional Abstracts, and Final Research Report Posted
Project Type:
Research
Has Results
Using a Decision Aid in the Emergency Room to Help Parents of Children with Head Trauma Understand Options for Diagnosing Brain Injury
Mayo Clinic
| Minnesota
Erik Hess, MD, MS
Project Status:
Completed; PCORI Public and Professional Abstracts, and Final Research Report Posted
Project Type:
Research
Has Results
Developing Methods to Predict Health Outcomes in Trauma Patients
University of California Berkeley
| California
Alan Hubbard, PhD
Project Status:
Completed; PCORI Public and Professional Abstracts, and Final Research Report Posted
Project Type:
Research