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State State The state where the project originates, or where the primary institution or organization is located. View Glossary
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Health Condition Health Conditions These are the broad terms we use to categorize our funded research studies; specific diseases or conditions are included within the appropriate larger category. Note: not all of our funded projects focus on a single disease or condition; some touch on multiple diseases or conditions, research methods, or broader health system interventions. Such projects won’t be listed by a primary disease/condition and so won’t appear if you use this filter tool to find them. View Glossary
Intervention Strategy Intervention Strategies PCORI funds comparative clinical effectiveness research (CER) studies that compare two or more options or approaches to health care, or that compare different ways of delivering or receiving care. View Glossary
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Year Awarded Year Awarded The year the PCORI Board of Governors approved funding for the project or the year the proposal received a notice of award. View Glossary
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Displaying 1 - 25 of 51 results

Project Title
Project Status
Project Type
Has Results

Using PCORnet to Improve Data Quality and Patient Follow-Up Within the Transcatheter Valve Therapy Registry

Mayo Clinic
| Minnesota
Maurice E. Sarano, MD
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
Research, Research Conducted Using PCORnet®
Has Results

Developing and Testing a System to Track Hospitalized Patients' Antimicrobial Use

Medical Research Analytics and Informatics Alliance
| Illinois
William Trick, MD
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
Research Infrastructure
Has Results

Using PCORnet to Track Zika Syndrome

University of Florida
| Florida
William Hogan, MD, MS
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
Research Infrastructure
Has Results

American BRCA Outcomes and Utilization of Testing: A Participant-Powered Research Network

University of South Florida
| Florida
Rebecca Sutphen, MD
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
PCORnet: Patient Powered Research Networks (PPRN) Phase II
Has Results

National Alzheimer's & Dementia Patient- & Caregiver-Powered Research Network

Mayo Clinic
| Minnesota
Ronald Petersen, MD, PhD^
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
PCORnet: Patient Powered Research Networks (PPRN) Phase II
Has Results

Patients, Advocates, and Rheumatology Teams for Research and Service (PARTNERS)

Duke University
| North Carolina
Laura Schanberg, MD
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
PCORnet: Patient Powered Research Networks (PPRN) Phase II
Has Results

DuchenneConnect Network

Parent Project Muscular Dystrophy
| New Jersey
Abby Bronson, MBA^
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
PCORnet: Patient Powered Research Networks (PPRN) Phase II
Has Results

Phelan-McDermid Syndrome Data Network (PMS_DN)

Phelan-McDermid Syndrome Foundation
| Florida
Megan O'Boyle, BA
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
PCORnet: Patient Powered Research Networks (PPRN) Phase II
Has Results

iConquerMS: A Participant-Powered Research Network

Accelerated Cure Project for Multiple Sclerosis
| Massachusetts
Robert McBurney, BSc, PhD
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
PCORnet: Patient Powered Research Networks (PPRN) Phase II
Has Results

PRIDEnet: A Participant-Powered Research Network of Sexual and Gender Minorities

University of California, San Francisco
| California
Mitchell R. Lunn, MD
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
PCORnet: Patient Powered Research Networks (PPRN) Phase II
Has Results

ArthritisPower (ARthritis Partnership with Comparative Effectiveness Researchers)

Global Healthy Living Foundation
| New York
Seth Ginsberg, BS
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
PCORnet: Patient Powered Research Networks (PPRN) Phase II
Has Results

Accelerating Data Value Across a National Community Health Center Network (ADVANCE)

Oregon Community Health Information Network (OCHIN), Inc.
| Oregon
Jon Puro, MPA, MHA^
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
PCORnet: Clinical Data Research Networks (CDRN) Phase II
Has Results

Creating Survey Questions to Measure Important Aspects of Health for People Living with HIV

University of Washington
| Washington
Heidi M. Crane, MD, MPH
Project Status:
Completed; PCORI Public and Professional Abstracts, and Final Research Report Posted
Project Type:
Research
Has Results

Developing Measures of Pain Appraisal and Pain-Related Self-Efficacy for People Living with Chronic Pain

University of Washington
| Washington
Dagmar Amtmann, PhD
Project Status:
Completed; PCORI Public and Professional Abstracts, and Final Research Report Posted
Project Type:
Research
Has Results

Developing Sets of Survey Questions to Measure Children's Sleep Health

The Childrens' Hospital of Philadelphia
| Pennsylvania
Christopher B. Forrest, MD, PhD
Project Status:
Completed; PCORI Public and Professional Abstracts, and Final Research Report Posted
Project Type:
Research
Has Results

Using Surveys to Assess Patient-Centered Factors that May Affect Responses to Chronic Pain Treatment

University of Pittsburgh
| Pennsylvania
Carol Greco, PhD
Project Status:
Completed; PCORI Public and Professional Abstracts, and Final Research Report Posted
Project Type:
Research
Has Results

Comparing Interview and Focus Group Data Collected in Person and Online

Family Health International
| North Carolina
Gregory Guest, PhD, MA
Project Status:
Completed; PCORI Public and Professional Abstracts, and Final Research Report Posted
Project Type:
Research
Has Results

Statistical Methods to Preserve Patient Privacy When Sharing and Analyzing Data

Harvard Pilgrim Health Care, Inc.
| Massachusetts
Darren Toh, ScD, BPHAR, MS
Project Status:
Completed; PCORI Public and Professional Abstracts, and Final Research Report Posted
Project Type:
Research
Has Results

Creating a Manual to Better Define Rehabilitation Treatments

Albert Einstein Healthcare Network
| Pennsylvania
John Whyte, MD, PhD
Project Status:
Completed; PCORI Public and Professional Abstracts, and Final Research Report Posted
Project Type:
Research
Has Results

Engaging Patients and Clinicians to Determine Design Features of N-of-1 Trials

Columbia University Medical Center
| New York
Nathalie Moise, MD, MS^
Project Status:
Completed; PCORI Public and Professional Abstracts, and Final Research Report Posted
Project Type:
Research
Has Results

Using Patient-Reported Outcome Measures during Routine Care of Patients with Type 2 Diabetes

National Committee for Quality Assurance
| District of Columbia
Sarah H. Scholle, DrPH, MPH
Project Status:
Completed; PCORI Public and Professional Abstracts, and Final Research Report Posted
Project Type:
Research
Has Results

Developing an Item Bank of Survey Questions to Measure Women's Experiences with Childbirth in Hospitals

Cedars Sinai Medical Center
| California
Kimberly D. Gregory, MD, MPH
Project Status:
Completed; PCORI Public and Professional Abstracts, and Final Research Report Posted
Project Type:
Research
Has Results

Comparing Statistical Models That Predict if Patients Will Take a New Medicine as Directed

Brigham and Women's Hospital
| Massachusetts
Joshua J. Gagne, TRD, PharmD, ScD
Project Status:
Completed; PCORI Public and Professional Abstracts, and Final Research Report Posted
Project Type:
Research
Has Results

Including Patient Preferences to Assess the Balance of Benefits and Harms of Treatment Options for People with Multiple Chronic Conditions

Johns Hopkins University School of Medicine
| Maryland
Cynthia Boyd, MD, MPH
Project Status:
Completed; PCORI Public and Professional Abstracts, and Final Research Report Posted
Project Type:
Research
Has Results

Comparing Three Ways of Involving Patients with Low Back Pain in Setting Research Priorities -- SMARTER

University of Washington
| Washington
Danielle Lavallee, PhD, PharmD
Project Status:
Completed; PCORI Public and Professional Abstracts, and Final Research Report Posted
Project Type:
Research

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