Explore Our Portfolio
Search a repository of PCORI-funded comparative clinical effectiveness research (CER) studies, as well as projects that seek to encourage engagement in research, disseminate and implement PCORI-funded research findings, and improve the nation's capacity to conduct patient-centered CER, among others. Learn more about the Portfolio |
Displaying 1 - 25 of 30 results
Project Title
Project Status
Project Type
Multi-stakeholder Engagement for Enabling Patient-Driven Research
Accelerated Cure Project for Multiple Sclerosis
| Massachusetts
Robert McBurney, BSc, PhD
Project Status:
Completed
Project Type:
PPRN Limited Competition Award
ABOUT Network - Project COGENT (Customizing Consumer GENerated Tools to Engage Researchers)
University of South Florida
| Florida
Rebecca Sutphen, MD
Project Status:
Completed
Project Type:
PPRN Limited Competition Award
An Open-Source Crowdsourcing Platform for Community-Engaged Research and Dissemination
Board of Trustees of the Leland Stanford Junior University
| California
Mitchell R. Lunn, MD, MAS
Project Status:
Completed
Project Type:
PPRN Limited Competition Award
Diversifying, Expanding and Tracking Patient Engagement in Arthritis Research
Global Healthy Living Foundation
| New York
William B. Nowell, PhD, MSW
Project Status:
Completed
Project Type:
PPRN Limited Competition Award
Coproducing Learning Health System Culture and Process to Accelerate PCOR in the ImproveCareNow Network
Cincinnati Children's Hospital Medical Center
| Ohio
Peter Margolis, MD, PhD
Project Status:
Completed
Project Type:
PPRN Limited Competition Award
Enhancing Engagement, Research Participation, & Collaboration through the IBD Partners Patient Powered Research Network
Crohn's & Colitis Foundation, Inc.
| New York
Angela Dobes, MPH
Project Status:
Completed
Project Type:
PPRN Limited Competition Award
PARTNERS - Enabling Real-time, Personalized Engagement in Research: An App-based Approach
Boston Children's Hospital
| Massachusetts
Marc Natter, MD
Project Status:
Completed
Project Type:
PPRN Limited Competition Award
Bridging the GAP between Patients/Caregivers and COPD Research - The COPD PPRN BRIDGE Project
COPD Foundation, Inc.
| Florida
Cara Pasquale
Project Status:
Completed
Project Type:
PPRN Limited Competition Award
Project Status:
Completed
Project Type:
PCORnet® Initiative on Health Plan/System Data Partnerships (A Stepwise Approach to Collaboration)
Project Status:
Completed
Project Type:
PCORnet® Initiative on Health Plan/System Data Partnerships (A Stepwise Approach to Collaboration)
Has Results
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
PCORnet®: Patient Powered Research Networks (PPRN) Phase II
Has Results
Community and Patient Partnered Research Network (CPPRN)
University of California, Los Angeles
| California
Kenneth Wells, MD, MPH
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
PCORnet®: Patient Powered Research Networks (PPRN) Phase II
Has Results
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
PCORnet®: Patient Powered Research Networks (PPRN) Phase II
Has Results
Community Engaged Network for All (CENA)
Genetic Alliance, Inc.
| District of Columbia
Sharon Terry, MA
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
PCORnet®: Patient Powered Research Networks (PPRN) Phase II
Has Results
American BRCA Outcomes and Utilization of Testing: A Participant-Powered Research Network
University of South Florida
| Florida
Rebecca Sutphen, MD
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
PCORnet®: Patient Powered Research Networks (PPRN) Phase II
Has Results
Primary Immunodeficiency Connect (PI CONNECT)
Immune Deficiency Foundation
| Maryland
Kathleen Sullivan, MD, PhD
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
PCORnet®: Patient Powered Research Networks (PPRN) Phase II
Has Results
National Alzheimer's & Dementia Patient- & Caregiver-Powered Research Network
Mayo Clinic
| Minnesota
Ronald Petersen, MD, PhD^
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
PCORnet®: Patient Powered Research Networks (PPRN) Phase II
Has Results
Patients, Advocates, and Rheumatology Teams for Research and Service (PARTNERS)
Duke University
| North Carolina
Laura Schanberg, MD
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
PCORnet®: Patient Powered Research Networks (PPRN) Phase II
Has Results
The Health eHeart Alliance
University of California, San Francisco
| California
Mark Pletcher, MD, MPH
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
PCORnet®: Patient Powered Research Networks (PPRN) Phase II
Has Results
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
PCORnet®: Patient Powered Research Networks (PPRN) Phase II
Has Results
Phelan-McDermid Syndrome Data Network (PMS_DN)
Phelan-McDermid Syndrome Foundation
| Florida
Megan O'Boyle, BA
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
PCORnet®: Patient Powered Research Networks (PPRN) Phase II
Has Results
MoodNetwork
Massachusetts General Hospital (The General Hospital Corp.)
| Massachusetts
Andrew A. Nierenberg, MD
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
PCORnet®: Patient Powered Research Networks (PPRN) Phase II
Has Results
The Vasculitis Patient-Powered Research Network
University of Pennsylvania
| Pennsylvania
Peter Merkel, MD, MPH
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
PCORnet®: Patient Powered Research Networks (PPRN) Phase II
Has Results
iConquerMS: A Participant-Powered Research Network
Accelerated Cure Project for Multiple Sclerosis
| Massachusetts
Robert McBurney, BSc, PhD
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
PCORnet®: Patient Powered Research Networks (PPRN) Phase II
Has Results
PCORnet Patient-Powered Research Network Phase ll: ImproveCareNow Network
Cincinnati Children's Hospital Medical Center
| Ohio
Peter Margolis, MD, PhD
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
PCORnet®: Patient Powered Research Networks (PPRN) Phase II