Explore Our Portfolio

Search a repository of PCORI-funded comparative clinical effectiveness research (CER) studies, as well as projects that seek to encourage engagement in research, disseminate and implement PCORI-funded research findings, and improve the nation's capacity to conduct patient-centered CER, among others. Learn more about the Portfolio

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Pilot Project: Working With Patients and Experts to Create a Survey about the Burdens of Living with a Rare Disease

University of Arkansas for Medical Sciences^
| Arkansas
Pamela H. Williams, JD, PhD, RN
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
Research

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