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State State The state where the project originates, or where the primary institution or organization is located. View Glossary
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Health Condition Health Conditions These are the broad terms we use to categorize our funded research studies; specific diseases or conditions are included within the appropriate larger category. Note: not all of our funded projects focus on a single disease or condition; some touch on multiple diseases or conditions, research methods, or broader health system interventions. Such projects won’t be listed by a primary disease/condition and so won’t appear if you use this filter tool to find them. View Glossary
Population Populations PCORI is interested in research that seeks to better understand how different clinical and health system options work for different people. These populations are frequently studied in our portfolio or identified as being of interest by our stakeholders. View Glossary
Intervention Strategy Intervention Strategies PCORI funds comparative clinical effectiveness research (CER) studies that compare two or more options or approaches to health care, or that compare different ways of delivering or receiving care. View Glossary
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Year Awarded Year Awarded The year the PCORI Board of Governors approved funding for the project or the year the proposal received a notice of award. View Glossary
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Displaying 1 - 12 of 12 results

Project Title
Project Status
Project Type

Implementing the Infusion Clinic Model in Sickle Cell Disease

Johns Hopkins School of Medicine
| Maryland
Sophie Lanzkron, MD
Project Status:
Awarded; Contract pending
Project Type:
Implementation Project (Limited Competition D&I PFA)

Comparing Two Ways to Help Patients with Sickle Cell Disease Manage Pain -- CaRISMA

University of Pittsburgh
| Pennsylvania
Charles Jonassaint, PhD, MHS
Project Status:
In progress; Recruiting
Project Type:
Research, Research Conducted Using PCORnet®

Community Health Worker and Mobile Health Programs to Help Young Adults with Sickle Cell Disease Transition to Using Adult Healthcare Services -- The COMETS Study

The Childrens' Hospital of Philadelphia
| Pennsylvania
David M. Rubin, MD, MS
Project Status:
In progress; Recruiting
Project Type:
Research

Comparing Transitional Care for Teens and Young Adults with Sickle Cell Disease with and without Peer Mentoring

Carolinas Medical Center
| North Carolina
Ifeyinwa Osunkwo, MD, MPH
Project Status:
In progress; Recruiting
Project Type:
Research

Comparing Two Ways to Help Parents of Children with Sickle Cell Disease Decide on Treatment with Their Doctors

Cincinnati Children's Hospital Medical Center
| Ohio
Lori E. Crosby, Psy.D
Project Status:
In progress; Enrollment complete
Project Type:
Research

Comparing the Benefits and Harms of Medicines for Long-Term Treatment of Blood Clots -- The ALTERNATIVE Study

University of California, San Francisco
| California
Margaret Fang, MD, MPH
Project Status:
In PCORI Peer-Review Process
Project Type:
Research
Has Results

How Accurate Are PCORnet® Data for Measures of Children's Healthcare Quality? -- A PCORnet® Study

Cincinnati Children's Hospital Medical Center
| Ohio
Kathleen Walsh, MD
Project Status:
Completed; PCORI Public and Professional Abstracts, and Final Research Report Posted
Project Type:
Research, Research Conducted Using PCORnet®
Has Results

Comparing Pain Management for Sickle Cell Disease Crises in Emergency Rooms and Infusion Centers

Johns Hopkins University
| Maryland
Sophie Lanzkron, MD, MHS
Project Status:
Completed; PCORI Public and Professional Abstracts, and Final Research Report Posted
Project Type:
Research
Has Results

Evaluating a Program to Improve Patient Experiences after Discharge from the Hospital -- The PArTNER Study

University of Illinois at Chicago
| Illinois
Jerry Krishnan, MD, PhD
Project Status:
Completed; PCORI Public and Professional Abstracts, and Final Research Report Posted
Project Type:
Research
Has Results

Can Personalized Encouragement Help People with Sickle Cell Disease Take Hydroxyurea Therapy Regularly?

Emory University^
| Georgia
Lakshmanan Krishnamurti, MD
Project Status:
Completed; PCORI Public and Professional Abstracts, and Final Research Report Posted
Project Type:
Research
Has Results

An Online Decision Aid to Help Patients and Caregivers Decide on Treatments for Sickle Cell Disease

Emory University^
| Georgia
Lakshmanan Krishnamurti, MD
Project Status:
Completed; PCORI Public and Professional Abstracts, and Final Research Report Posted
Project Type:
Research
Has Results

Developing an Interactive Online Guide to Support the Use of Causal Inference Methods in Comparative Effectiveness Research

Medical Technology and Practice Patterns Institute
| Maryland
Yi Zhang, PhD, MS
Project Status:
Completed; PCORI Public and Professional Abstracts, and Final Research Report Posted
Project Type:
Research

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