Explore Our Portfolio
Displaying 1 - 17 of 17 results
Project Title
Project Status
Project Type
Improving the Health of Parents and Their Adolescent and Transition-Age Youth With IDD
The University of North Carolina at Chapel Hill
| North Carolina
Kathleen Thomas, MPH, PHD
Project Status:
In progress; Not yet recruiting
Project Type:
Research
Supporting Families' Treatment Decisions with Evidence on Treatment of Urea Cycle Disorders
Children's National Health System
| District of Columbia
Nicholas Ah Mew, MD
Project Status:
In progress; Recruitment not applicable
Project Type:
Dissemination Project (Limited Competition D&I PFA)
Has Results
Does Personalized Risk Information Help Patients and Doctors Make Informed Decisions about Colorectal Cancer Screening?
Indiana University
| Indiana
Peter H. Schwartz, MD, PhD, MA
Project Status:
In progress; Enrollment complete
Project Type:
Research
Comparing Two Ways to Help Patients with Sickle Cell Disease Manage Pain -- The CaRISMA Study
University of Pittsburgh
| Pennsylvania
Charles Jonassaint, PhD, MHS
Project Status:
In progress; Data collected
Project Type:
Research, Research Conducted Using PCORnet®
Emerging Technologies and Therapeutics Reports: Landscape Review and Evidence Map of Gene Therapy
RAND Corporation
| California
Project Status:
Completed
Project Type:
Other Evidence Products
Comparing Three Ways to Identify and Provide Care to Patients at Risk for Hereditary Cancer
Kaiser Foundation Research Institute
| California
Douglas Corley, MD, PhD
Project Status:
In progress; Recruiting
Project Type:
Research, Research Conducted Using PCORnet®
Comparing Home- Versus Clinic-Based Phototherapy for the Treatment of Psoriasis -- The LITE Study
University of Pennsylvania
| Pennsylvania
Joel Mitchell Gelfand, MD, MS
Project Status:
In progress; Enrollment complete
Project Type:
Research
Community Health Worker and Mobile Health Programs to Help Young Adults with Sickle Cell Disease Transition to Using Adult Healthcare Services -- The COMETS Study
The Childrens' Hospital of Philadelphia
| Pennsylvania
David M. Rubin, MD, MS
Project Status:
In progress; Enrollment complete
Project Type:
Research
Comparing Transitional Care for Teens and Young Adults with Sickle Cell Disease with and without Peer Mentoring
Carolinas Medical Center
| North Carolina
Payal Desai
Project Status:
In progress; Data collected
Project Type:
Research
Comparing Two Ways to Help Parents of Children with Sickle Cell Disease Decide on Treatment with Their Doctors
Cincinnati Children's Hospital Medical Center
| Ohio
Lori E. Crosby, Psy.D
Project Status:
In PCORI Peer-Review Process
Project Type:
Research
Has Results
Does a Web-Based Platform for Caregivers Help People with Down Syndrome Get Recommended Health Services?
Massachusetts General Hospital
| Massachusetts
Brian Skotko, MD, MPP
Project Status:
Completed; PCORI Public and Professional Abstracts, and Final Research Report Posted
Project Type:
Research
Has Results
Comparing Treatment Options for Urea Cycle Disorders
Children's Research Institute
| District of Columbia
Nicholas Ah Mew, MD^
Project Status:
Completed; PCORI Public and Professional Abstracts, and Final Research Report Posted
Project Type:
Research
Has Results
Developmental Outcomes in Children with Duarte Galactosemia
Emory University
| Georgia
Judith L. Fridovich-Keil, PhD
Project Status:
Completed; PCORI Public and Professional Abstracts, and Final Research Report Posted
Project Type:
Research
Has Results
Comparing Pain Management for Sickle Cell Disease Crises in Emergency Rooms and Infusion Centers
Johns Hopkins University
| Maryland
Sophie Lanzkron, MD, MHS
Project Status:
Completed; PCORI Public and Professional Abstracts, and Final Research Report Posted
Project Type:
Research
Has Results
Evaluating the Impact of a User-Friendly Report of Genetic Testing Results for Parents of Children with Genetic Disorders
Weis Center For Research-Geisinger Clinic
| Pennsylvania
Marc S. Williams, MD
Project Status:
Completed; PCORI Public and Professional Abstracts, and Final Research Report Posted
Project Type:
Research
Has Results
An Online Decision Aid to Help Patients and Caregivers Decide on Treatments for Sickle Cell Disease
Emory University^
| Georgia
Lakshmanan Krishnamurti, MD
Project Status:
Completed; PCORI Public and Professional Abstracts, and Final Research Report Posted
Project Type:
Research
Has Results
Helping Caregivers of Children with Differences/Disorders of Sex Development Decide on Treatment
University of Michigan at Ann Arbor
| Michigan
David E. Sandberg, PhD
Project Status:
Completed; PCORI Public and Professional Abstracts, and Final Research Report Posted
Project Type:
Research