Explore Our Portfolio
Displaying 1 - 25 of 39 results
Project Title
Project Status
Project Type
Comparing Two Treatments for Children with Lennox-Gastaut Syndrome
Ann & Robert H. Lurie Children's Hospital of Chicago
| Illinois
Sandi Lam, MD, MBA
Project Status:
In progress; Not yet recruiting
Project Type:
Research, Research Conducted Using PCORnet®
Does Receiving Guidelines-Based Care Improve Health Outcomes for Adults with Congenital Heart Defects? -- The CHI-RON Study
Louisiana Public Health Institute
| Louisiana
Thomas Carton, PhD, MS
Project Status:
In progress; Enrollment complete
Project Type:
Research, Research Conducted Using PCORnet®
Supporting Families' Treatment Decisions with Evidence on Treatment of Urea Cycle Disorders
Children's National Health System
| District of Columbia
Nicholas Ah Mew, MD
Project Status:
In progress; Recruitment not applicable
Project Type:
Dissemination Project (Limited Competition D&I PFA)
Comparing Three Ways to Treat Children with Inactive Spondyloarthritis -- The BACK-OFF JSpA Study
Children's Hospital of Philadelphia
| Pennsylvania
Pamela Weiss, MD, AB
Project Status:
In progress; Recruiting
Project Type:
Research, Research Conducted Using PCORnet®
Comparing Two Ways to Help Patients with Sickle Cell Disease Manage Pain -- The CaRISMA Study
University of Pittsburgh
| Pennsylvania
Charles Jonassaint, PhD, MHS
Project Status:
In progress; Data collected
Project Type:
Research, Research Conducted Using PCORnet®
Expanding Use of a Decision Aid to Help People with Lupus Nephritis Make Decisions about Treatment
University of Alabama at Birmingham
| Alabama
Jasvinder Singh, MD, MPH
Project Status:
In progress; Recruitment not applicable
Project Type:
Implementation Project (Implementation of Effective Shared Decision Making Approaches PFA)
Using Two Versus Three Antibiotics to Treat MAC Lung Infections
Oregon Health & Science University
| Oregon
Kevin Winthrop, MD, MPH
Project Status:
In progress; Recruiting
Project Type:
Research
Comparing Strategies for Health Clinics to Increase HPV Vaccinations in Youth
UCLA School of Public Health
| California
Roshan Bastani, PhD
Project Status:
In progress; Recruiting
Project Type:
Research
Community Health Worker and Mobile Health Programs to Help Young Adults with Sickle Cell Disease Transition to Using Adult Healthcare Services -- The COMETS Study
The Childrens' Hospital of Philadelphia
| Pennsylvania
David M. Rubin, MD, MS
Project Status:
In progress; Enrollment complete
Project Type:
Research
Comparing Transitional Care for Teens and Young Adults with Sickle Cell Disease with and without Peer Mentoring
Carolinas Medical Center
| North Carolina
Payal Desai
Project Status:
In progress; Data collected
Project Type:
Research
Comparing Two Ways to Help Parents of Children with Sickle Cell Disease Decide on Treatment with Their Doctors
Cincinnati Children's Hospital Medical Center
| Ohio
Lori E. Crosby, Psy.D
Project Status:
PCORI Peer-Review Process Complete
Project Type:
Research
Has Results
Comparing Two Medicines for Adults with Myasthenia Gravis -- The PROMISE-MG Study
Duke University
| North Carolina
Donald B. Sanders, MD, and Pushpa Narayanaswami, MD
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
Research
Has Results
Testing Two Patient Surveys for Diagnosing Rare Genetic Conditions
Boston Children's Hospital
| Massachusetts
Ingrid A. Holm, MD, MPH
Project Status:
Completed; PCORI Public and Professional Abstracts, and Final Research Report Posted
Project Type:
Research
Has Results
Comparing Treatments for Resistant Kawasaki Disease -- The KIDCARE Study
University of California San Diego
| California
Jane C. Burns, MD
Project Status:
Completed; PCORI Public and Professional Abstracts, and Final Research Report Posted
Project Type:
Research
Has Results
Comparing Two Physical Therapy Schedules for Children with Cerebral Palsy -- The ACHIEVE Study
The Ohio State University
| Ohio
Jill C. Heathcock, MPT, PhD
Project Status:
Completed; PCORI Public and Professional Abstracts, and Final Research Report Posted
Project Type:
Research
Has Results
Improving Trial Design and Analysis for Treatments for Rare Diseases
University of Michigan School of Public Health
| Michigan
Kelley M. Kidwell, PhD
Project Status:
Completed; PCORI Public and Professional Abstracts, and Final Research Report Posted
Project Type:
Research
Has Results
Developing a Process for Getting Patient and Caregiver Input on Clinical Practice Guidelines
RAND Corporation
| Massachusetts
Dmitry Khodyakov, PhD, MA
Project Status:
Completed; PCORI Public and Professional Abstracts, and Final Research Report Posted
Project Type:
Research
Has Results
Does a Web-Based Platform for Caregivers Help People with Down Syndrome Get Recommended Health Services?
Massachusetts General Hospital
| Massachusetts
Brian Skotko, MD, MPP
Project Status:
Completed; PCORI Public and Professional Abstracts, and Final Research Report Posted
Project Type:
Research
Has Results
Comparing Treatment with Long-Term Steroids or Long-Term Antibiotics to Prevent Lung Infections in Patients with Bronchiectasis
Oregon Health & Science University
| Oregon
Kevin Winthrop, MD, MPH
Project Status:
Completed; PCORI Public and Professional Abstracts, and Final Research Report Posted
Project Type:
Research
Has Results
Comparing Treatment Options for Urea Cycle Disorders
Children's Research Institute
| District of Columbia
Nicholas Ah Mew, MD^
Project Status:
Completed; PCORI Public and Professional Abstracts, and Final Research Report Posted
Project Type:
Research
Has Results
Comparing Surgery with and without Duraplasty for Youth with Chiari Malformation Type I and Syringomyelia
Washington University School of Medicine
| Missouri
David Limbrick, MD, MS, PhD
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
Research
Has Results
Comparing Chemotherapy Recovery at Home versus in the Hospital for Children with Acute Myeloid Leukemia
The Children's Hospital of Philadelphia
| Pennsylvania
Richard Aplenc, MD, PhD
Project Status:
Completed; PCORI Public and Professional Abstracts, and Final Research Report Posted
Project Type:
Research
Has Results
Comparing Results of Three Treatments for Idiopathic Subglottic Stenosis
Vanderbilt University Medical Center
| Tennessee
Alexander Gelbard, MD
Project Status:
Completed; PCORI Public and Professional Abstracts, and Final Research Report Posted
Project Type:
Research
Has Results
Developmental Outcomes in Children with Duarte Galactosemia
Emory University
| Georgia
Judith L. Fridovich-Keil, PhD
Project Status:
Completed; PCORI Public and Professional Abstracts, and Final Research Report Posted
Project Type:
Research
Has Results
Comparing the Safety and Effectiveness of Medicines to Treat Crohn’s Disease in Children and Adolescents -- The COMBINE Trial
The University of North Carolina at Chapel Hill
| North Carolina
Michael D. Kappelman, MD, MPH
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
Research, Research Conducted Using PCORnet®