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Displaying 1 - 25 of 27 results

Project Title
Project Status
Project Type

A Multiple Sclerosis Patient-Powered Research Network - Phase I

Accelerated Cure Project for Multiple Sclerosis
| Massachusetts
Robert McBurney, BSc, PhD
Project Status:
PCORnet: Phase I completed; Phase II in progress
Project Type:
PCORnet®: Patient Powered Research Networks (PPRN) Phase I

NephCure Kidney Network for Patients with Nephrotic Syndrome - Phase I

Arbor Research Collaborative for Health
| Michigan
Elizabeth Cope, MPH, PhD^
Project Status:
PCORnet: Phase I completed; Phase II in progress
Project Type:
PCORnet®: Patient Powered Research Networks (PPRN) Phase I

The COPD Patient-Powered Research Network - Phase I

COPD Foundation, Inc.
| Florida
Richard Mularski, MD, MS
Project Status:
PCORnet: Phase I completed; Phase II in progress
Project Type:
PCORnet®: Patient Powered Research Networks (PPRN) Phase I

Mood Patient-Powered Research Network - Phase I

Massachusetts General Hospital (The General Hospital Corp.)
| Massachusetts
Andrew A. Nierenberg, MD
Project Status:
PCORnet: Phase I completed; Phase II in progress
Project Type:
PCORnet®: Patient Powered Research Networks (PPRN) Phase I

Phelan-McDermid Syndrome Data Network - Phase I

Phelan-McDermid Syndrome Foundation
| Florida
Megan O'Boyle, BA
Project Status:
PCORnet: Phase I completed; Phase II in progress
Project Type:
PCORnet®: Patient Powered Research Networks (PPRN) Phase I

The CCFA Partners Patient-Powered Research Network - Phase I

Crohn's & Colitis Foundation, Inc
| New York
R. Balfour Sartor, MD
Project Status:
PCORnet: Phase I completed; Phase II in progress
Project Type:
PCORnet®: Patient Powered Research Networks (PPRN) Phase I

Community-Engaged Network for All (CENA) - Phase I

Genetic Alliance, Inc.
| District of Columbia
Sharon Terry, MA
Project Status:
PCORnet: Phase I completed; Phase II in progress
Project Type:
PCORnet®: Patient Powered Research Networks (PPRN) Phase I

PI Patient Research Connection: PI-CONNECT - Phase I

Immune Deficiency Foundation
| Maryland
Kathleen Sullivan, MD, PhD
Project Status:
PCORnet: Phase I completed; Phase II in progress
Project Type:
PCORnet®: Patient Powered Research Networks (PPRN) Phase I

The Vasculitis Patient-Powered Research Network - Phase I

The Trustees of The University of Pennsylvania
| Pennsylvania
Peter Merkel, MD, MPH
Project Status:
PCORnet: Phase I completed; Phase II in progress
Project Type:
PCORnet®: Patient Powered Research Networks (PPRN) Phase I

American BRCA Outcomes and Utilization of Testing Patient-Powered Research Network (ABOUT Network) - Phase I

University of South Florida
| Florida
Rebecca Sutphen, MD
Project Status:
PCORnet: Phase I completed; Phase II in progress
Project Type:
PCORnet®: Patient Powered Research Networks (PPRN) Phase I

The Patients, Advocates and Rheumatology Teams Network for Research and Service (PARTNERS) Consortium - Phase I

Duke University
| North Carolina
Laura Schanberg, MD
Project Status:
PCORnet: Phase I completed; Phase II in progress
Project Type:
PCORnet®: Patient Powered Research Networks (PPRN) Phase I

ImproveCareNow: A Learning Health System for Children with Crohn's Disease and Ulcerative Colitis - Phase I

Cincinnati Children's Hospital Medical Center
| Ohio
Peter Margolis, MD, PhD
Project Status:
PCORnet: Phase I completed; Phase II in progress
Project Type:
PCORnet®: Patient Powered Research Networks (PPRN) Phase I

Rare Epilepsy Network (REN) - Phase I

Epilepsy Foundation
| Maryland
Janice M. Buelow, PhD, RN
Project Status:
PCORnet: Phase I completed; Phase II in progress
Project Type:
PCORnet®: Patient Powered Research Networks (PPRN) Phase I

Arthritis Patient Partnership with Comparative Effectiveness Researchers (AR-PoWER) - Phase I

Global Healthy Living Foundation
| New York
Seth Ginsberg, BS
Project Status:
PCORnet: Phase I completed; Phase II in progress
Project Type:
PCORnet®: Patient Powered Research Networks (PPRN) Phase I

The DuchenneConnect Patient-Report Registry Infrastructure Project - Phase I

Parent Project Muscular Dystrophy
| New Jersey
Holly Peay, MS
Project Status:
PCORnet: Phase I completed; Phase II in progress
Project Type:
PCORnet®: Patient Powered Research Networks (PPRN) Phase I

The Health eHeart Alliance - Phase I

University of California San Francisco
| California
Mark Pletcher, MD, MPH
Project Status:
PCORnet: Phase I completed; Phase II in progress
Project Type:
PCORnet®: Patient Powered Research Networks (PPRN) Phase I

New York City Clinical Data Research Network (NYC-CDRN) - Phase I

Weill Medical College of Cornell University
| New York
Rainu Kaushal, MD, MPH
Project Status:
PCORnet: Phase I completed; Phase II in progress
Project Type:
PCORnet®: Clinical Data Research Networks (CDRN) Phase I

PaTH: Towards a Learning Health System in the Mid-Atlantic Region - Phase I

University of Pittsburgh
| Pennsylvania
Rachel Hess, MD, MS
Project Status:
PCORnet: Phase I completed; Phase II in progress
Project Type:
PCORnet®: Clinical Data Research Networks (CDRN) Phase I

The Greater Plains Collaborative (GPC) - Phase I

University of Kansas Medical Center Research Institute
| Kansas
Russ Waitman, PhD
Project Status:
PCORnet: Phase I completed; Phase II in progress
Project Type:
PCORnet®: Clinical Data Research Networks (CDRN) Phase I

Accelerating Data Value Across a National Community Health Center Network (ADVANCE) - Phase I

Oregon Community Health Information Network
| Oregon
Jennifer E. DeVoe, DPhil, MD
Project Status:
PCORnet: Phase I completed; Phase II in progress
Project Type:
PCORnet®: Clinical Data Research Networks (CDRN) Phase I

Research Action for Health Network (REACHnet) - Phase I

Louisiana Public Health Institute
| Louisiana
Thomas W. Carton, PhD, MS^
Project Status:
PCORnet: Phase I completed; Phase II in progress
Project Type:
PCORnet®: Clinical Data Research Networks (CDRN) Phase I

A National Pediatric Learning Health System (PEDSnet) - Phase I

Children's Hospital of Philadelphia
| Pennsylvania
Christopher B. Forrest, MD, PhD
Project Status:
PCORnet: Phase I completed; Phase II in progress
Project Type:
PCORnet®: Clinical Data Research Networks (CDRN) Phase I

Scalable Collaborative Infrastructure for a Learning Healthcare System (SCILHS) - Phase I

Harvard University Medical School
| Massachusetts
Kenneth D. Mandl, MD, MPH
Project Status:
PCORnet: Phase I completed; Phase II in progress
Project Type:
PCORnet®: Clinical Data Research Networks (CDRN) Phase I

Patient-Oriented Scalable National Network for Effectiveness Research (pSCANNER) - Phase I

University of California, San Diego
| California
Lucila Ohno-Machado, MD, MBA, PhD
Project Status:
PCORnet: Phase I completed; Phase II in progress
Project Type:
PCORnet®: Clinical Data Research Networks (CDRN) Phase I

The Mid-South Clinical Data Research Network - Phase I

Vanderbilt University Medical Center
| Tennessee
Russell Rothman, MD, MPP
Project Status:
PCORnet: Phase I completed; Phase II in progress
Project Type:
PCORnet®: Clinical Data Research Networks (CDRN) Phase I

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