Explore Our Portfolio

Search a repository of PCORI-funded comparative clinical effectiveness research (CER) studies, as well as projects that seek to encourage engagement in research, disseminate and implement PCORI-funded research findings, and improve the nation's capacity to conduct patient-centered CER, among others. Learn more about the Portfolio

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Health Condition Health Conditions These are the broad terms we use to categorize our funded research studies; specific diseases or conditions are included within the appropriate larger category. Note: not all of our funded projects focus on a single disease or condition; some touch on multiple diseases or conditions, research methods, or broader health system interventions. Such projects won’t be listed by a primary disease/condition and so won’t appear if you use this filter tool to find them. View Glossary
Year Awarded Year Awarded The year that funding for the project was approved, or the year the proposal received a notice of award. View Glossary
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Displaying 1 - 25 of 36 results

Project Title
Project Status
Project Type
Project Status:
Awarded; In progress
Project Type:
Research Infrastructure

Coordinating Center: Communications

Duke University, DCRI
| North Carolina
Adrian F. Hernandez, MD, MHS
Project Status:
Awarded; In progress
Project Type:
Research Infrastructure, PCORnet® Coordinating Center Phase 3

Coordinating Center: Stakeholder Engagement

VUMC (Vanderbilt University Medical Center)
| Tennessee
Karen Winkfield, MD, PhD
Project Status:
Awarded; In progress
Project Type:
Research Infrastructure, PCORnet® Coordinating Center Phase 3

Coordinating Center: Common Data Model, Data Characterization, and Privacy Preserving Record Linkage

Duke University, DCRI
| North Carolina
Adrian F. Hernandez, MD, MHS
Project Status:
Awarded; In progress
Project Type:
Research Infrastructure, PCORnet® Coordinating Center Phase 3

Coordinating Center: Participatory Approach to Query Fulfillment and Analytic Tool Development

Children's Hospital of Philadelphia
| Pennsylvania
Charles Bailey, MD, PhD
Project Status:
Awarded; In progress
Project Type:
Research Infrastructure, PCORnet® Coordinating Center Phase 3

Coordinating Center: Program Management Office

Duke University, DCRI
| Massachusetts
Adrian F. Hernandez, MD, MHS
Project Status:
Awarded; In progress
Project Type:
Research Infrastructure, PCORnet® Coordinating Center Phase 3

PEDSnet: Advancing Pediatric Patient-Centered Outcomes Research in PCORnet

The Children's Hospital of Philadelphia
| Pennsylvania
Christopher Forrest, MD, PhD
Project Status:
Awarded; In progress
Project Type:
Research Infrastructure, PCORnet®: Clinical Research Network (Phase 3)

INSIGHT Clinical Research Network

Joan & Sanford I. Weill Medical College of Cornell University
| New York
Rainu Kaushal, MD, MPH
Project Status:
Awarded; In progress
Project Type:
Research Infrastructure, PCORnet®: Clinical Research Network (Phase 3)

OneFlorida+ Partner Engagement Network

University of Florida
| Florida
Elizabeth Shenkman, PhD
Project Status:
Awarded; In progress
Project Type:
Research Infrastructure, PCORnet®: Clinical Research Network (Phase 3)

Accelerating Data Value Across a National Community Health Center Network (ADVANCE) Clinical Research Network (CRN)

Oregon Community Health Information Network, Inc. (OCHIN)
| Oregon
Erika Cottrell, PhD, MPP
Project Status:
Awarded; In progress
Project Type:
Research Infrastructure, PCORnet®: Clinical Research Network (Phase 3)
Project Status:
Awarded; In progress
Project Type:
Research Infrastructure, PCORnet®: Clinical Research Network (Phase 3)

The Stakeholders, Technology and Researchers (STAR) Clinical Research Network: Phase 3

Vanderbilt University Medical Center
| Tennessee
Russell Rothman, MD, MPP
Project Status:
Awarded; In progress
Project Type:
Research Infrastructure, PCORnet®: Clinical Research Network (Phase 3)

PaTH to Health: PCORnet Clinical Research Network

University of Pittsburgh School of Medicine
| Pennsylvania
Kathleen McTigue, MD, MPH, MS
Project Status:
Awarded; In progress
Project Type:
Research Infrastructure, PCORnet®: Clinical Research Network (Phase 3)

REACHnet 3.0: Optimizing Infrastructure for Conducting Patient-Centered Outcomes Research

Louisiana Public Health Institute
| Louisiana
Thomas Carton, PhD, MS, BS
Project Status:
Awarded; In progress
Project Type:
Research Infrastructure, PCORnet®: Clinical Research Network (Phase 3)

Supporting Families' Treatment Decisions with Evidence on Treatment of Urea Cycle Disorders

Children's National Health System
| District of Columbia
Nicholas Ah Mew, MD
Project Status:
In progress; Recruitment not applicable
Project Type:
Dissemination Project (Limited Competition D&I PFA)

Supporting the Next Generation of Learning Health Systems Researchers

Agency for Healthcare Research & Quality (AHRQ)
| Maryland
Project Status:
Awarded; In progress
Project Type:
Research Infrastructure
Project Status:
In progress; Recruitment not applicable
Project Type:
Research Infrastructure

Natural Experiments Coordinating Center

Regents of the University of California, Los Angeles
| California
Kenrik Duru, MD, MSHS
Project Status:
Awarded; In progress
Project Type:
Research Infrastructure

Phelan-McDermid Syndrome Data Network - Phase I

Phelan-McDermid Syndrome Foundation
| Florida
Megan O'Boyle, BA
Project Status:
PCORnet: Phase I completed; Phase II in progress
Project Type:
PCORnet®: Patient Powered Research Networks (PPRN) Phase I

A Multiple Sclerosis Patient-Powered Research Network - Phase I

Accelerated Cure Project for Multiple Sclerosis
| Massachusetts
Robert McBurney, BSc, PhD
Project Status:
PCORnet: Phase I completed; Phase II in progress
Project Type:
PCORnet®: Patient Powered Research Networks (PPRN) Phase I

The COPD Patient-Powered Research Network - Phase I

COPD Foundation, Inc.
| Florida
Richard Mularski, MD, MS
Project Status:
PCORnet: Phase I completed; Phase II in progress
Project Type:
PCORnet®: Patient Powered Research Networks (PPRN) Phase I

NephCure Kidney Network for Patients with Nephrotic Syndrome - Phase I

Arbor Research Collaborative for Health
| Michigan
Elizabeth Cope, MPH, PhD^
Project Status:
PCORnet: Phase I completed; Phase II in progress
Project Type:
PCORnet®: Patient Powered Research Networks (PPRN) Phase I

Mood Patient-Powered Research Network - Phase I

Massachusetts General Hospital (The General Hospital Corp.)
| Massachusetts
Andrew A. Nierenberg, MD
Project Status:
PCORnet: Phase I completed; Phase II in progress
Project Type:
PCORnet®: Patient Powered Research Networks (PPRN) Phase I

The CCFA Partners Patient-Powered Research Network - Phase I

Crohn's & Colitis Foundation, Inc
| New York
R. Balfour Sartor, MD
Project Status:
PCORnet: Phase I completed; Phase II in progress
Project Type:
PCORnet®: Patient Powered Research Networks (PPRN) Phase I

Community-Engaged Network for All (CENA) - Phase I

Genetic Alliance, Inc.
| District of Columbia
Sharon Terry, MA
Project Status:
PCORnet: Phase I completed; Phase II in progress
Project Type:
PCORnet®: Patient Powered Research Networks (PPRN) Phase I

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