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Health Condition Health Conditions These are the broad terms we use to categorize our funded research studies; specific diseases or conditions are included within the appropriate larger category. Note: not all of our funded projects focus on a single disease or condition; some touch on multiple diseases or conditions, research methods, or broader health system interventions. Such projects won’t be listed by a primary disease/condition and so won’t appear if you use this filter tool to find them. View Glossary
Year Awarded Year Awarded The year that funding for the project was approved, or the year the proposal received a notice of award. View Glossary
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Displaying 1 - 23 of 23 results

Project Title
Project Status
Project Type

Vaccine Uptake Research in Autoimmune Disease: Multistakeholder Planning

Global Healthy Living Foundation
| New York
Shilpa Venkatachalam, MA, MPH, PHD
Project Status:
Awarded; In progress
Project Type:
Engagement Award Conference
Project Status:
Completed
Project Type:
Engagement Award Conference
Project Status:
In progress; Recruitment not applicable
Project Type:
Implementation Project (Limited Competition D&I PFA)

Sleeping Well After Cancer: Translating Patient-Centered Research Into Practice

Memorial Sloan Kettering Cancer Center
| New York
Jun J. Mao, MD, MSCE
Project Status:
Completed
Project Type:
Conference: Dissemination

Diversifying, Expanding and Tracking Patient Engagement in Arthritis Research

Global Healthy Living Foundation
| New York
William B. Nowell, PhD, MSW
Project Status:
Project Type:
PPRN Limited Competition Award
Project Status:
Project Type:
PPRN Limited Competition Award

Treating Tourette's Together

Tourette Association of America
| New York
Diana Shineman
Project Status:
Completed
Project Type:
Engagement Award Conference

APDA Diversity in Parkinson's Disease Research Initiative

American Parkinson Disease Association (APDA)
| New York
Rebecca Gilbert, MD, PhD
Project Status:
Completed
Project Type:
Engagement Award Conference

KAND Scientific and Family Engagement Conference

KIF1A.ORG
| New York
Luke Rosen, BA
Project Status:
Completed
Project Type:
Engagement Award Conference

CTF Patient-Centered Outcomes Research: A Forum for All Stakeholders

Children's Tumor Foundation
| New York
Traceann Rosenthal, BA, AAS
Project Status:
Completed
Project Type:
Engagement Award Conference

Patient-Centered CMT/HNPP Pain Summit

Hereditary Neuropathy Foundation
| New York
Allison Moore, BS
Project Status:
Completed
Project Type:
Engagement Award Conference

The Home Dialysis Controversies' Conference Series

National Kidney Foundation
| New York
Michael Rocco, MD, MS
Project Status:
Completed
Project Type:
Engagement Award Conference

Dissemination and Implementation of Virtual Care Visits for Parkinson's Disease

University of Rochester
| New York
E. Ray Dorsey, MD, MBA
Project Status:
In progress; Recruitment not applicable
Project Type:
Implementation Project (Limited Competition D&I PFA)
Project Status:
Completed
Project Type:
Engagement Award Conference

Social Media and Research Toolkit (SMART)

Global Healthy Living Foundation
| New York
Shilpa Venkatachalam, MD, MPH, PhD
Project Status:
Completed
Project Type:
Engagement Award Conference

National Kidney Foundation Patient-Centered Outcomes Research Stakeholders' Conference

National Kidney Foundation
| New York
Teri Browne, MSW, PhD
Project Status:
Completed; With Final Summary Report
Project Type:
Engagement Award Conference

Pain in Cerebral Palsy

Cerebral Palsy Foundation
| New York
David Roye, MD
Project Status:
Completed
Project Type:
Engagement Award Conference

OHDSI Symposium 2016

Columbia University
| New York
George Hripcsak, MD, MS
Project Status:
Completed
Project Type:
Engagement Award Conference

PCOR Conferences: Charcot-Marie-Tooth (CMT) & Inherited Peripheral Neuropathies (IPN)

Hereditary Neuropathy Foundation
| New York
Allison Moore, BS
Project Status:
Completed
Project Type:
Engagement Award Conference
Project Status:
Completed
Project Type:
Engagement Award Conference

OHDSI Symposium

Columbia University
| New York
George Hripcsak, MD, MS
Project Status:
Completed
Project Type:
Engagement Award Conference

Workshops to Transform the Health Care of Women with Disabilities

Cerebral Palsy International Research Foundation
| New York
David Roye, MD
Project Status:
Completed; With Final Summary Report
Project Type:
Engagement Award Conference

PCOR & Reproductive Health Summit

Planned Parenthood Federation of America
| New York
Julia Kohn, PhD, MPA
Project Status:
Completed
Project Type:
Engagement Award Conference

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