Explore Our Portfolio

Search a repository of PCORI-funded comparative clinical effectiveness research (CER) studies, as well as projects that seek to encourage engagement in research, disseminate and implement PCORI-funded research findings, and improve the nation's capacity to conduct patient-centered CER, among others. Learn more about the Portfolio

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Displaying 1 - 11 of 11 results

Project Title
Project Status
Project Type

AHRQ and PCORI Learning Health System Embedded Scientist Training and Research Centers (P30)

Agency for Healthcare Research and Quality
| Maryland
Project Status:
Awarded; In progress
Project Type:
Research Infrastructure

Supporting the Next Generation of Learning Health Systems Researchers

Agency for Healthcare Research & Quality (AHRQ)
| Maryland
Project Status:
Awarded; In progress
Project Type:
Research Infrastructure
Has Results

Rare Epilepsy Network

Epilepsy Foundation
| Maryland
Brandy Fureman, PhD^
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
PCORnet®: Patient Powered Research Networks (PPRN) Phase II
Has Results

Primary Immunodeficiency Connect (PI CONNECT)

Immune Deficiency Foundation
| Maryland
Kathleen Sullivan, MD, PhD
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
PCORnet®: Patient Powered Research Networks (PPRN) Phase II
Has Results

National Alzheimer's & Dementia Patient- & Caregiver-Powered Research Network

Mayo Clinic
| Minnesota
Ronald Petersen, MD, PhD^
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
PCORnet®: Patient Powered Research Networks (PPRN) Phase II
Has Results

DuchenneConnect Network

Parent Project Muscular Dystrophy
| New Jersey
Abby Bronson, MBA^
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
PCORnet®: Patient Powered Research Networks (PPRN) Phase II
Has Results

Interactive Autism Network

Hugo W. Moser Research Institute at Kennedy Krieger, Inc.
| Maryland
Jessica Law, MD, MPH
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
PCORnet®: Patient Powered Research Networks (PPRN) Phase II
Has Results

The Patient-Centered Network of Learning Health Systems (LHSNet)

Mayo Clinic
| Minnesota
Veronique L. Roger, MD^
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
PCORnet®: Clinical Data Research Networks (CDRN) Phase II

PI Patient Research Connection: PI-CONNECT - Phase I

Immune Deficiency Foundation
| Maryland
Kathleen Sullivan, MD, PhD
Project Status:
PCORnet: Phase I completed; Phase II in progress
Project Type:
PCORnet®: Patient Powered Research Networks (PPRN) Phase I

Rare Epilepsy Network (REN) - Phase I

Epilepsy Foundation
| Maryland
Janice M. Buelow, PhD, RN
Project Status:
PCORnet: Phase I completed; Phase II in progress
Project Type:
PCORnet®: Patient Powered Research Networks (PPRN) Phase I

The DuchenneConnect Patient-Report Registry Infrastructure Project - Phase I

Parent Project Muscular Dystrophy
| New Jersey
Holly Peay, MS
Project Status:
PCORnet: Phase I completed; Phase II in progress
Project Type:
PCORnet®: Patient Powered Research Networks (PPRN) Phase I

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