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Year Awarded Year Awarded The year that funding for the project was approved, or the year the proposal received a notice of award. View Glossary
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Displaying 1 - 25 of 46 results

Project Title
Project Status
Project Type

Coordinating Center: Communications

Duke University, DCRI
| North Carolina
Adrian F. Hernandez, MD, MHS
Project Status:
Awarded; In progress
Project Type:
Research Infrastructure

Coordinating Center: Stakeholder Engagement

VUMC (Vanderbilt University Medical Center)
| Tennessee
Karen Winkfield, MD, PhD
Project Status:
Awarded; In progress
Project Type:
Research Infrastructure

Coordinating Center: Common Data Model, Data Characterization, and Privacy Preserving Record Linkage

Duke University, DCRI
| North Carolina
Adrian F. Hernandez, MD, MHS
Project Status:
Awarded; In progress
Project Type:
Research Infrastructure

Coordinating Center: Participatory Approach to Query Fulfillment and Analytic Tool Development

Children's Hospital of Philadelphia
| Pennsylvania
Charles Bailey, MD, PhD
Project Status:
Awarded; In progress
Project Type:
Research Infrastructure

Coordinating Center: Program Management Office

Duke University, DCRI
| North Carolina
Adrian F. Hernandez, MD, MHS
Project Status:
Awarded; In progress
Project Type:
Research Infrastructure

Supporting the Next Generation of Learning Health Systems Researchers

Agency for Healthcare Research and Quality
| Maryland
Project Status:
Awarded; In progress
Project Type:
Research Infrastructure
Project Status:
Awarded; In progress
Project Type:
PCORnet®: Patient Powered Research Networks (PPRN) Phase I
Has Results

Developing and Testing a System to Track Hospitalized Patients' Antimicrobial Use

Medical Research Analytics and Informatics Alliance
| Illinois
William Trick, MD
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
Research Infrastructure
Has Results

Using PCORnet to Track Zika Syndrome

University of Florida
| Florida
William Hogan, MD, MS
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
Research Infrastructure

Natural Experiments Coordinating Center

Regents of the University of California, Los Angeles
| California
Kenrik Duru, MD, MSHS
Project Status:
Awarded; In progress
Project Type:
Research Infrastructure

HealthCore-Anthem Research Network (HCARN)

Health Core, Inc.
| Delaware
Kevin Haynes, MS, PhrmD
Project Status:
Awarded; In progress
Project Type:
PCORnet® Initiative on Health Plan/System Data Partnerships (A Stepwise Approach to Collaboration)
Has Results

Rare Epilepsy Network

Epilepsy Foundation
| Maryland
Brandy Fureman, PhD^
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
PCORnet®: Patient Powered Research Networks (PPRN) Phase II
Has Results

Community and Patient Partnered Research Network (CPPRN)

University of California, Los Angeles
| California
Kenneth Wells, MD, MPH
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
PCORnet®: Patient Powered Research Networks (PPRN) Phase II
Has Results

The COPD Patient-Powered Research Network

COPD Foundation, Inc.
| Florida
Barbara Yawn, MD^
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
PCORnet®: Patient Powered Research Networks (PPRN) Phase II
Has Results

Community Engaged Network for All (CENA)

Genetic Alliance, Inc.
| District of Columbia
Sharon Terry, MA
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
PCORnet®: Patient Powered Research Networks (PPRN) Phase II
Has Results
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
PCORnet®: Patient Powered Research Networks (PPRN) Phase II
Has Results

Primary Immunodeficiency Connect (PI CONNECT)

Immune Deficiency Foundation
| Maryland
Kathleen Sullivan, MD, PhD
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
PCORnet®: Patient Powered Research Networks (PPRN) Phase II
Has Results
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
PCORnet®: Patient Powered Research Networks (PPRN) Phase II
Has Results
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
PCORnet®: Patient Powered Research Networks (PPRN) Phase II
Has Results

The Health eHeart Alliance

University of California, San Francisco
| California
Mark Pletcher, MD, MPH
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
PCORnet®: Patient Powered Research Networks (PPRN) Phase II
Has Results

DuchenneConnect Network

Parent Project Muscular Dystrophy
| New Jersey
Abby Bronson, MBA^
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
PCORnet®: Patient Powered Research Networks (PPRN) Phase II
Has Results

Phelan-McDermid Syndrome Data Network (PMS_DN)

Phelan-McDermid Syndrome Foundation
| Florida
Megan O'Boyle, BA
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
PCORnet®: Patient Powered Research Networks (PPRN) Phase II
Has Results

MoodNetwork

Massachusetts General Hospital (The General Hospital Corp.)
| Massachusetts
Andrew A. Nierenberg, MD
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
PCORnet®: Patient Powered Research Networks (PPRN) Phase II
Has Results

The Vasculitis Patient-Powered Research Network

University of Pennsylvania
| Pennsylvania
Peter Merkel, MD, MPH
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
PCORnet®: Patient Powered Research Networks (PPRN) Phase II
Has Results

iConquerMS: A Participant-Powered Research Network

Accelerated Cure Project for Multiple Sclerosis
| Massachusetts
Robert McBurney, BSc, PhD
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
PCORnet®: Patient Powered Research Networks (PPRN) Phase II

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