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Year Awarded Year Awarded The year the PCORI Board of Governors approved funding for the project or the year the proposal received a notice of award. View Glossary
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Displaying 1 - 25 of 39 results

Project Title
Project Status
Project Type
Has Results
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
Research Infrastructure
Has Results

Using PCORnet to Understand Diabetes Medicine Prescribed to Patients

Mid-South CDRN
| Tennessee
Russell Rothman, MD, MPP
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
Research Infrastructure
Has Results

Using PCORnet to Understand PCSK9 Inhibitor Use among Patients at Risk for Heart Disease

University of Florida Board of Trustees
| Florida
Rhonda Cooper-DeHoff, PharmD, MS
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
Research Infrastructure
Has Results

Using PCORnet to Understand Use of Molecular Tests and Treatments for Cancerous Tumors

University of Kansas Medical Center (GPC CDRN)
| Kansas
Russ Waitman, PhD
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
Research Infrastructure
Has Results

Developing and Testing a System to Track Hospitalized Patients' Antimicrobial Use

Medical Research Analytics and Informatics Alliance
| Illinois
William Trick, MD
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
Research Infrastructure
Has Results

Using PCORnet to Track Zika Syndrome

University of Florida
| Florida
William Hogan, MD, MS
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
Research Infrastructure
Has Results

Rare Epilepsy Network

Epilepsy Foundation
| Maryland
Brandy Fureman, PhD^
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
PCORnet: Patient Powered Research Networks (PPRN) Phase II
Has Results

Community and Patient Partnered Research Network (CPPRN)

University of California, Los Angeles
| California
Kenneth Wells, MD, MPH
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
PCORnet: Patient Powered Research Networks (PPRN) Phase II
Has Results

The COPD Patient-Powered Research Network

COPD Foundation, Inc.
| Florida
Barbara Yawn, MD^
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
PCORnet: Patient Powered Research Networks (PPRN) Phase II
Has Results

Community Engaged Network for All (CENA)

Genetic Alliance, Inc.
| District of Columbia
Sharon Terry, MA
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
PCORnet: Patient Powered Research Networks (PPRN) Phase II
Has Results
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
PCORnet: Patient Powered Research Networks (PPRN) Phase II
Has Results

Primary Immunodeficiency Connect (PI CONNECT)

Immune Deficiency Foundation
| Maryland
Kathleen Sullivan, MD, PhD
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
PCORnet: Patient Powered Research Networks (PPRN) Phase II
Has Results
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
PCORnet: Patient Powered Research Networks (PPRN) Phase II
Has Results
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
PCORnet: Patient Powered Research Networks (PPRN) Phase II
Has Results

The Health eHeart Alliance

University of California, San Francisco
| California
Mark Pletcher, MD, MPH
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
PCORnet: Patient Powered Research Networks (PPRN) Phase II
Has Results

DuchenneConnect Network

Parent Project Muscular Dystrophy
| New Jersey
Abby Bronson, MBA^
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
PCORnet: Patient Powered Research Networks (PPRN) Phase II
Has Results

Phelan-McDermid Syndrome Data Network (PMS_DN)

Phelan-McDermid Syndrome Foundation
| Florida
Megan O'Boyle, BA
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
PCORnet: Patient Powered Research Networks (PPRN) Phase II
Has Results

MoodNetwork

Massachusetts General Hospital (The General Hospital Corp.)
| Massachusetts
Andrew A. Nierenberg, MD
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
PCORnet: Patient Powered Research Networks (PPRN) Phase II
Has Results

The Vasculitis Patient-Powered Research Network

University of Pennsylvania
| Pennsylvania
Peter Merkel, MD, MPH
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
PCORnet: Patient Powered Research Networks (PPRN) Phase II
Has Results

iConquerMS: A Participant-Powered Research Network

Accelerated Cure Project for Multiple Sclerosis
| Massachusetts
Robert McBurney, BSc, PhD
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
PCORnet: Patient Powered Research Networks (PPRN) Phase II
Has Results

PCORnet Patient-Powered Research Network Phase ll: ImproveCareNow Network

Cincinnati Children's Hospital Medical Center
| Ohio
Peter Margolis, MD, PhD
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
PCORnet: Patient Powered Research Networks (PPRN) Phase II
Has Results

PRIDEnet: A Participant-Powered Research Network of Sexual and Gender Minorities

University of California, San Francisco
| California
Mitchell R. Lunn, MD
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
PCORnet: Patient Powered Research Networks (PPRN) Phase II
Has Results

Interactive Autism Network

Hugo W. Moser Research Institute Kennedy Krieger
| Maryland
Jessica Law, MD, MPH
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
PCORnet: Patient Powered Research Networks (PPRN) Phase II
Has Results

IBD Partners: A Participant-Powered Research Network of Patients with Crohn's Disease and Ulcerative Colitis

The University of North Carolina at Chapel Hill
| North Carolina
Michael Kappelman, MD, MPH^
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
PCORnet: Patient Powered Research Networks (PPRN) Phase II
Has Results

ArthritisPower (ARthritis Partnership with Comparative Effectiveness Researchers)

Global Healthy Living Foundation
| New York
Seth Ginsberg, BS
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
PCORnet: Patient Powered Research Networks (PPRN) Phase II

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