Explore Our Portfolio
Displaying 1 - 23 of 23 results
Project Title
Project Status
Project Type
Improving Instrumental Variables Methods for Non-Randomized Studies
The Trustees of The University of Pennsylvania
| Pennsylvania
Luke Keele, PhD
Project Status:
In progress; Recruitment not applicable
Project Type:
Research
Comparing Two Ways for Parents of Youth with Intellectual and Developmental Disabilities to Build Their Advocacy Skills
The University of North Carolina at Chapel Hill
| North Carolina
Kathleen Thomas, MPH, PHD
Project Status:
In progress; Recruiting
Project Type:
Research
Does Receiving Guidelines-Based Care Improve Health Outcomes for Adults with Congenital Heart Defects? -- The CHI-RON Study
Louisiana Public Health Institute
| Louisiana
Thomas Carton, PhD, MS
Project Status:
In progress; Enrollment complete
Project Type:
Research, Research Conducted Using PCORnet®
Supporting Families' Treatment Decisions with Evidence on Treatment of Urea Cycle Disorders
Children's National Health System
| District of Columbia
Nicholas Ah Mew, MD
Project Status:
In progress; Recruitment not applicable
Project Type:
Dissemination Project (Limited Competition D&I PFA)
Has Results
Does Personalized Risk Information Help Patients and Doctors Make Informed Decisions about Colorectal Cancer Screening?
Indiana University
| Indiana
Peter H. Schwartz, MD, PhD, MA
Project Status:
In PCORI Peer-Review Process
Project Type:
Research
Has Results
Comparing Two Ways to Help Patients with Sickle Cell Disease Manage Pain -- The CaRISMA Study
University of Pittsburgh
| Pennsylvania
Charles Jonassaint, PhD, MHS
Project Status:
In progress; Data collected
Project Type:
Research, Research Conducted Using PCORnet®
Emerging Technologies and Therapeutics Reports: Landscape Review and Evidence Map of Gene Therapy
RAND Corporation
| California
Project Status:
Completed
Project Type:
Other Evidence Products
Comparing Three Ways to Identify and Provide Care to Patients at Risk for Hereditary Cancer
Kaiser Foundation Research Institute
| California
Douglas Corley, MD, PhD
Project Status:
In progress; Enrollment complete
Project Type:
Research, Research Conducted Using PCORnet®
Has Results
Testing Methods to Link Health Data while Protecting Patient Privacy
Indiana University
| Indiana
Shaun Grannis, MD, MS
Project Status:
Completed; PCORI Public and Professional Abstracts, and Final Research Report Posted
Project Type:
Research
Comparing Home- Versus Clinic-Based Phototherapy for the Treatment of Psoriasis -- The LITE Study
University of Pennsylvania
| Pennsylvania
Joel Mitchell Gelfand, MD, MS
Project Status:
In progress; Data collected
Project Type:
Research
Community Health Worker and Mobile Health Programs to Help Young Adults with Sickle Cell Disease Transition to Using Adult Healthcare Services -- The COMETS Study
The Childrens' Hospital of Philadelphia
| Pennsylvania
Tanisha Belton, DrPh, MPH
Project Status:
In progress; Enrollment complete
Project Type:
Research
Comparing Transitional Care for Teens and Young Adults with Sickle Cell Disease with and without Peer Mentoring
Carolinas Medical Center
| North Carolina
Payal Desai
Project Status:
In PCORI Peer-Review Process
Project Type:
Research
Has Results
Comparing Ways to Help Parents of Children with Sickle Cell Disease Decide on Treatment -- The ENGAGE HU Study
Cincinnati Children's Hospital Medical Center
| Ohio
Lori E. Crosby, PsyD
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
Research
Has Results
Does a Web-Based Platform for Caregivers Help People with Down Syndrome Get Recommended Health Services?
Massachusetts General Hospital
| Massachusetts
Brian Skotko, MD, MPP
Project Status:
Completed; PCORI Public and Professional Abstracts, and Final Research Report Posted
Project Type:
Research
Has Results
Comparing Treatment Options for Urea Cycle Disorders
Children's Research Institute
| District of Columbia
Nicholas Ah Mew, MD^
Project Status:
Completed; PCORI Public and Professional Abstracts, and Final Research Report Posted
Project Type:
Research
Has Results
Developmental Outcomes in Children with Duarte Galactosemia
Emory University
| Georgia
Judith L. Fridovich-Keil, PhD
Project Status:
Completed; PCORI Public and Professional Abstracts, and Final Research Report Posted
Project Type:
Research
Has Results
Comparing Pain Management for Sickle Cell Disease Crises in Emergency Rooms and Infusion Centers
Johns Hopkins University
| Maryland
Sophie Lanzkron, MD, MHS
Project Status:
Completed; PCORI Public and Professional Abstracts, and Final Research Report Posted
Project Type:
Research
Has Results
Testing a Peer-Support Program for Parents of Infants Going Home from the NICU
Children's National Medical Center
| District of Columbia
Karen Fratantoni, MD, MPH
Project Status:
Completed; PCORI Public and Professional Abstracts, and Final Research Report Posted
Project Type:
Research
Has Results
Comparing Entry Sites for Cerebrospinal Fluid Shunts in Children with Hydrocephalus
Baylor College of Medicine
| Texas
William Whitehead, MD, MPH
Project Status:
Completed; PCORI Public and Professional Abstracts, and Final Research Report Posted
Project Type:
Research
Has Results
Does a Video Chat Referral Process Help Families with Children Who Have Medicaid to Initiate Mental Health Care?
Seattle Children's Research Institute^
| Washington
Tumaini Coker, MD, MBA
Project Status:
Completed; PCORI Public and Professional Abstracts, and Final Research Report Posted
Project Type:
Research
Has Results
Evaluating the Impact of a User-Friendly Report of Genetic Testing Results for Parents of Children with Genetic Disorders
Weis Center For Research-Geisinger Clinic
| Pennsylvania
Marc S. Williams, MD
Project Status:
Completed; PCORI Public and Professional Abstracts, and Final Research Report Posted
Project Type:
Research
Has Results
An Online Decision Aid to Help Patients and Caregivers Decide on Treatments for Sickle Cell Disease
Emory University^
| Georgia
Lakshmanan Krishnamurti, MD
Project Status:
Completed; PCORI Public and Professional Abstracts, and Final Research Report Posted
Project Type:
Research
Has Results
Helping Caregivers of Children with Differences/Disorders of Sex Development Decide on Treatment
University of Michigan at Ann Arbor
| Michigan
David E. Sandberg, PhD
Project Status:
Completed; PCORI Public and Professional Abstracts, and Final Research Report Posted
Project Type:
Research