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State State The state where the project originates, or where the primary institution or organization is located. View Glossary
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Health Condition Health Conditions These are the broad terms we use to categorize our funded research studies; specific diseases or conditions are included within the appropriate larger category. Note: not all of our funded projects focus on a single disease or condition; some touch on multiple diseases or conditions, research methods, or broader health system interventions. Such projects won’t be listed by a primary disease/condition and so won’t appear if you use this filter tool to find them. View Glossary
Population Populations PCORI is interested in research that seeks to better understand how different clinical and health system options work for different people. These populations are frequently studied in our portfolio or identified as being of interest by our stakeholders. View Glossary
Intervention Strategy Intervention Strategies PCORI funds comparative clinical effectiveness research (CER) studies that compare two or more options or approaches to health care, or that compare different ways of delivering or receiving care. View Glossary
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Year Awarded Year Awarded The year the PCORI Board of Governors approved funding for the project or the year the proposal received a notice of award. View Glossary
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Displaying 1 - 25 of 129 results

Project Title
Project Status
Project Type

Implementing the Infusion Clinic Model in Sickle Cell Disease

Johns Hopkins School of Medicine
| Maryland
Sophie Lanzkron, MD
Project Status:
Awarded; Contract pending
Project Type:
Implementation Project (Limited Competition D&I PFA)

Healthcare Communication to Optimize Functional Outcomes for Youth with Intellectual and Developmental Disabilities

Hugo W. Moser Research Institute Kennedy Krieger
| Maryland
Alison Pritchard, PhD
Project Status:
Awarded; In progress
Project Type:
Engagement Award Project

Communicating Late-Effects of Cancer: The State of the Science and Establishing Research Priorities

Hugo W. Moser Research Institute Kennedy Krieger
| Maryland
Lisa Jacobson, PhD
Project Status:
Awarded; In progress
Project Type:
Engagement Award Conference

Building Capacity for Long-Term Care Stakeholders in COVID-Related PCOR/CER

Institute for Patient- and Family-Centered Care
| Maryland
Beverley H. Johnson, BSN, FAAN
Project Status:
Awarded; In progress
Project Type:
Engagement Award Project

Learning from Experience: Exploring the Impact of Approaches to Family Presence in Hospitals During COVID-19

Institute for Patient- and Family-Centered Care
| Maryland
Deborah Dokken, MPA
Project Status:
Awarded; In progress
Project Type:
Engagement Award Project

Building Capacity to Reduce COVID-19 Long Term Effects on Survivors

Johns Hopkins University
| Maryland
Hanan Aboumatar, BS, MD, MPH
Project Status:
Awarded; In progress
Project Type:
Engagement Award Project

Preparing Adults with Osteogenesis Imperfecta to Engage in Research on Access and Quality of Care for Their Rare Disease

Osteogenesis Imperfecta Foundation
| Maryland
Tracy Hart, MPH
Project Status:
Awarded; In progress
Project Type:
Engagement Award Project

Postpartum Home Blood Pressure Monitoring, Postpartum Treatment of Hypertensive Disorders of Pregnancy, and Peripartum Magnesium Sulfate Regimens for Preeclampsia With Severe Features (A Systematic Review)

Agency for Healthcare Research and Quality (AHRQ)
| Maryland
Project Status:
Ongoing
Project Type:
Research

Postpartum Care for Women up to One Year After Birth (A Systematic Review)

Agency for Healthcare Research and Quality (AHRQ)
| Maryland
Project Status:
Ongoing
Project Type:
Research

Attention Deficit Hyperactivity Disorder: Diagnosis and Treatment in Children and Adolescents (A Systematic Review)

Agency for Healthcare Research and Quality (AHRQ)
| Maryland
Project Status:
Ongoing
Project Type:
Research

Leveraging Virtual Communication to Advance PCOR Adoption by the Rare Bone Disease Community

Osteogenesis Imperfecta Foundation
| Maryland
Tracy Hart, MPH
Project Status:
Awarded; In progress
Project Type:
Engagement Award Conference

Engaging Older Adults and Caregivers in Medication Optimization Research

University of Maryland, Baltimore
| Maryland
Nicole Brandt, PHARMD,MBA
Project Status:
Awarded; In progress
Project Type:
Engagement Award Project

Advanced Computational Approaches for Integrating Data to Assess Effect Heterogeneity

Johns Hopkins Bloomberg School of Public Health
| Maryland
Elizabeth Stuart, PhD
Project Status:
In progress; Recruitment not applicable
Project Type:
Research

Prioritization of CER/PCOR on Prostate Cancer Active Surveillance: Community Consensus Initiative

University of Maryland Baltimore
| Maryland
Mohummad Siddiqui, MD
Project Status:
Awarded; In progress
Project Type:
Engagement Award Conference

Comparing the Effects of Different Treatment Approaches for Neuroendocrine Tumors on Patient-Reported Outcomes -- The NET-PRO Study

University of Iowa
| Iowa
Michael O'Rorke, PhD, BSc
Project Status:
In progress; Not yet recruiting
Project Type:
Research, Research Conducted Using PCORnet®

COmmunity Based Development of CollaboRatIVE and Sustainable PartNerships in PCOR/CER- (CO-DRIVEN)

University of Maryland, Baltimore
| Maryland
Michelle Medeiros, MA, MS
Project Status:
Awarded; In progress
Project Type:
Engagement Award Project

#IDatHome: A Virtual Conference for Infectious Diseases-Focused Patient-Centered Outcomes Research

University of Maryland, Baltimore
| Maryland
Joey Mattingly, PhrmD, PhD, MBA
Project Status:
Awarded; In progress
Project Type:
Engagement Award Conference

Engaging Underserved Urban Communities in Research: Addressing Challenges in the Context of COVID-19

Institute for Patient and Family Centered Care
| Maryland
Marie Abraham, MA
Project Status:
Awarded; In progress
Project Type:
Engagement Award Project

Addressing the Digital Divide to Improve Patient-Centered Outcomes Research (ADD2PCOR)

Johns Hopkins University School of Nursing
| Maryland
Kelly Gleason, PhD, RN
Project Status:
Awarded; In progress
Project Type:
Engagement Award Project

Partnering with Patients and Caregivers Affected by COVID-19 to Advance Patient-Centered Outcomes Research

Johns Hopkins University
| Maryland
Hanan Aboumatar, MD, MPH
Project Status:
Completed; With Final Summary Report
Project Type:
Engagement Award Project

Management Strategies for Infantile Epilepsy (A Systematic Review)

Memorandum of Understanding with Agency for Healthcare Research and Quality (AHRQ)
| Maryland
Project Status:
Ongoing
Project Type:
Research

Convening PCOR/CER Stakeholders to Address Issues in Rural Perinatal Health

University of Iowa College of Public Health
| Iowa
Kelli Ryckman, PhD, MS
Project Status:
Completed; With Final Summary Report
Project Type:
Engagement Award Conference

Amplifying the Peer Voice in Behavioral Health Research to Drive Transformation

Institute for Patient- and Family-Centered Care
| Maryland
Pam Dardess, MPH
Project Status:
Awarded; In progress
Project Type:
Engagement Award Conference

Expanding Access to the Infusion Center Model for People Living with SCD

Johns Hopkins School of Medicine
| Maryland
Sophie Lanzkron, MD, MHS
Project Status:
Awarded; In progress
Project Type:
Dissemination Project

Capacity Building for a Learning PCOR System

University of Maryland Baltimore
| Maryland
C. Daniel Mullins, PhD
Project Status:
Completed
Project Type:
Engagement Award Project

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