PCORI Stories
What does patient-centered research look like in the field? These short features provide a glimpse into the workings of the studies and projects we support. Hear from researchers what it’s like to partner with patients and other stakeholders, and from patients about being part of a research team.
Displaying 1 - 22 of 22 results
'It's Nonjudgmental Support': Breathing Easier with the Healthy Lungs Program
Comparing approaches to help longtime smokers quit smoking for good.
'You Have to Meet People Where They Are to Help Them': Patient Advisors Guide Successful Diabetes Self-Management Study
Comparing individually tailored text messages with other approaches to encourage people with diabetes to take care of themselves.
Engagement Awards Teams Ride Momentum to Research Projects
The Eugene Washington PCORI Engagement Awards build communities to participate in patient-centered outcomes research. But three Engagement Awards teams are doing more than participating in research—they are conducting it.
Thriving in School after Childhood Cancer
PCORI awardees provide tools for easing the path to education for survivors.
Coordinated Treatment Planning Shows Promise for Patients with Lung Cancer
People with lung cancer need several specialists for treatment. A PCORI-funded project found that with up-front treatment planning among the different specialists, patients get treatment that is more appropriate for their cancer’s severity.
Bone Marrow Transplants: More Than Just Survival
An engagement awardee develops an agenda for research about the procedure’s impact on patients and caregivers.
Choosing the Right Breast Cancer Treatment
Research team aims to understand the effects of choosing double mastectomy on women’s cancer distress and body image.
Improving Health in the Mississippi Delta through Powerful Engagement
A PCORI Engagement Award enables a cancer awareness and prevention program to expand its reach within rural, largely African-American communities facing high cancer rates.
Can Telehealth Improve Care?
Telehealth has the potential to provide access to care for a wide variety of populations that are now underserved. Two PCORI-funded studies are using telehealth in different ways to test its potential.
Helping Men Decide on Prostate Cancer Treatment
Problems are more likely three years after surgery than after radiation or surveillance, a study finds.
Using Mobile Technology to Increase Screening for Hepatitis B and C among Asian Americans
Americans of Asian ancestry have an increased risk of hepatitis B and, in some cases, hepatitis C, but many have not been screened for these illnesses. Researchers are testing an interactive app to see whether it encourages more people to be screened.
Dealing with Cancer Symptoms and Treatment Side Effects
Many patients suffer from severe symptoms, as well as troubling side effects. How can patients and care providers best manage them?
Between Clinicians and Patients, Trained Community Members May Provide a Key Link
Community health workers and patient navigators work to lower barriers patients may face in receiving care and following treatment plans. PCORI-funded studies are testing whether lay people on clinical teams make a measurable difference.
The PROMIS in Putting Patients' Waiting Room Time to Good Use
Patients struggle to provide their full health perspective; a Baltimore team examines whether an iPad questionnaire can improve patient-doctor communication
Under One Roof: Pulling Specialists Together to Improve Lung Cancer Care
Treatment of lung cancer requires the services of several specialists. A Memphis project is examining whether patient outcomes improve when care providers come together in a coordinated program.
Using a Video to Empower Patients Facing Major Surgery
How can patients about to undergo major surgery effectively communicate their wishes for postoperative care? Feedback from patients, family members, and surgeons led researchers to revise their plan for testing a tool to promote advance care planning.
Do You Hear What I'm Saying?
Everyone agrees on the importance of effective communication between patients and their healthcare providers, but it’s hard to improve what you can’t measure. Researchers are developing a survey to assess this foundation of patient-centered care.
Prostate Cancer: Voices of Experience
Patients newly diagnosed with prostate cancer have to make difficult decisions about their care. Men who have been there join Vanderbilt University researchers to personalize information on treatment outcomes.
Guiding Men through Prostate Cancer Treatment Options
Men diagnosed with prostate cancer have many treatment options. A local barbershop owner and community health advocate is helping a Florida researcher test an app designed to aid patients in weighing their choices.
Mejorando La Calidad de Vida Para Latinas con Cáncer de Seno
La mayoría de Latinas con cáncer de seno enfrenten más desafíos en manejar su enfermedad que la poblacion general. Una investigadora esta estudiando si grupos de apollo con relevancia cultural pueden mejorar la vida de estas mujeres - y de sus cuidadores.
Improving Quality of Life for Latinas with Breast Cancer
Most Hispanic women with breast cancer face extra challenges in dealing with the disease. One researcher aims to find out if culturally relevant group support can help such women and their caregivers.
Transforming Community-Based Research on the High Plains
Research reports can be difficult to understand; a “Boot Camp Translation” project in Colorado makes evidence-based recommendations accessible for diverse communities.
