PCORI Stories
What does patient-centered research look like in the field? These short features provide a glimpse into the workings of the studies and projects we support. Hear from researchers what it’s like to partner with patients and other stakeholders, and from patients about being part of a research team.
Displaying 1 - 4 of 4 results
Engagement Project Yields Unexpected Dividends
PCORI-funded conferences about a genetic condition were the springboard to statewide observances and launch of a clinic.
Using Mobile Technology to Increase Screening for Hepatitis B and C among Asian Americans
Americans of Asian ancestry have an increased risk of hepatitis B and, in some cases, hepatitis C, but many have not been screened for these illnesses. Researchers are testing an interactive app to see whether it encourages more people to be screened.
Genetic Test Results: Putting Parents and Doctors on the Same Page
Parents of children with rare genetic disorders, and their doctors, need genetic information to guide care decisions. A redesigned report for providing information to families and clinicians may improve communication and shared decision making.
ImproveCareNow: Involving Patients in Research on Inflammatory Bowel Disease
A health system engages patients and families in every step of research to ensure that the outcomes measured matter to patients’ lives.