What does patient-centered research look like in the field? These short features provide a glimpse into the workings of the studies and projects we support. Hear from researchers what it’s like to partner with patients and other stakeholders, and from patients about being part of a research team.
Displaying 1 - 9 of 9 results
Changing the Conversation about Intellectual and Developmental Disabilities in the Community
A world-famous puppeteer and a community activist bring their firsthand experiences with disabilities to a PCORI-funded project to provide easier access to community venues for children with intellectual and developmental disabilities and their families.
Breaking Down Barriers for Children with Intellectual and Developmental Disabilities and Their Families
How an occupational therapist is helping those with intellectual and developmental disabilities participate in their communities through a PCORI-funded project.
Improving Life for Women with Parkinson's Disease
PCORI Engagement Award supports the creation of a national, prioritized women and Parkinson’s research and care agenda.
Expanding the Multiple Sclerosis Research Toolbox
A PCORI Engagement Award explores new avenues for increasing minority community participation in research.
Tackling Chronic Pain While Reducing Opioid Use
A health system in Washington instituted a clinical plan that has succeeded in lowering patients’ opioid doses, according to a PCORI-funded study.
Can Virtual House Calls Provide More Patients with High-Quality Parkinson's Disease Care?
Patients with Parkinson's disease often have difficulty traveling to appointments with far-away specialists. Simple videoconferencing software may bring care into their homes.
Enlisting the Brain in the Fight against Pain
A project in Alabama takes a down-to-earth approach in teaching patients to think differently and cope more effectively with chronic pain. It may alleviate depression, too.
To Stay at Home, Older Adults Should Plan Ahead
Many Americans fail to plan for the health events that commonly occur when they reach their 80s, 90s, or 100s. Researchers are working with older adults to develop a tool that helps them have a voice in what happens as their health needs grow.
Tablet Tool Harnesses Data from Many Patients for Individual Choices
When Rosalinda Leblanc was diagnosed with multiple sclerosis in 2004, she didn’t know what path to take; California experts in MS are now devising a digital portal to predict disease course and guide medication choice.