PCORI Stories
What does patient-centered research look like in the field? These short features provide a glimpse into the workings of the studies and projects we support. Hear from researchers what it’s like to partner with patients and other stakeholders, and from patients about being part of a research team.
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Medication Choices Based on Data, Not Fear
Researchers are investigating how patients with inflammatory bowel disease weigh treatment benefits and risks—and then are using that information to consider differences between two types of drugs.
Genetic Test Results: Putting Parents and Doctors on the Same Page
Parents of children with rare genetic disorders, and their doctors, need genetic information to guide care decisions. A redesigned report for providing information to families and clinicians may improve communication and shared decision making.
ImproveCareNow: Involving Patients in Research on Inflammatory Bowel Disease
A health system engages patients and families in every step of research to ensure that the outcomes measured matter to patients’ lives.
