PCORI Stories
What does patient-centered research look like in the field? These short features provide a glimpse into the workings of the studies and projects we support. Hear from researchers what it’s like to partner with patients and other stakeholders, and from patients about being part of a research team.
Displaying 1 - 13 of 13 results
Changing the Conversation about Intellectual and Developmental Disabilities in the Community
A world-famous puppeteer and a community activist bring their firsthand experiences with disabilities to a PCORI-funded project to provide easier access to community venues for children with intellectual and developmental disabilities and their families.
Breaking Down Barriers for Children with Intellectual and Developmental Disabilities and Their Families
How an occupational therapist is helping those with intellectual and developmental disabilities participate in their communities through a PCORI-funded project.
Engagement Awards Teams Ride Momentum to Research Projects
The Eugene Washington PCORI Engagement Awards build communities to participate in patient-centered outcomes research. But three Engagement Awards teams are doing more than participating in research—they are conducting it.
Expanding the Multiple Sclerosis Research Toolbox
A PCORI Engagement Award explores new avenues for increasing minority community participation in research.
Helping Men Decide on Prostate Cancer Treatment
Problems are more likely three years after surgery than after radiation or surveillance, a study finds.
Preventing Life-Threatening Blood Clots
A study finds success in educating hospitalized patients about the importance of preventive treatment.
Fighting Weight Gain in Children and Teens Who Take Bipolar Disorder Medications
Can a diabetes drug, along with lifestyle changes, keep off extra pounds and improve quality of life?
Using Mobile Technology to Increase Screening for Hepatitis B and C among Asian Americans
Americans of Asian ancestry have an increased risk of hepatitis B and, in some cases, hepatitis C, but many have not been screened for these illnesses. Researchers are testing an interactive app to see whether it encourages more people to be screened.
Long-Term Nicotine Replacement Therapy for Smokers with Lung Disease
A cold-turkey approach to smoking cessation often doesn’t succeed, but a more gradual tactic might be successful for some high-risk smokers.
Prostate Cancer: Voices of Experience
Patients newly diagnosed with prostate cancer have to make difficult decisions about their care. Men who have been there join Vanderbilt University researchers to personalize information on treatment outcomes.
Improving Patient-Nurse Communication to Prevent a Life-Threatening Complication
Hospitalized patients are at increased risk for potentially fatal blood clots in their legs and lungs; a Baltimore team is exploring how to ensure wider use of preventive measures.
Guiding Men through Prostate Cancer Treatment Options
Men diagnosed with prostate cancer have many treatment options. A local barbershop owner and community health advocate is helping a Florida researcher test an app designed to aid patients in weighing their choices.
Take as Directed (or Why Not?)
William Vinacco decided not to take his newly prescribed blood pressure medicine; a Boston team is devising tools to help patients talk to their doctors to address concerns that might have led to that choice.
