PCORI Stories
What does patient-centered research look like in the field? These short features provide a glimpse into the workings of the studies and projects we support. Hear from researchers what it’s like to partner with patients and other stakeholders, and from patients about being part of a research team.
Displaying 1 - 20 of 20 results
Enhancing the Delivery of Mental Health Services to Children in Underserved Areas
Study designed to address parents’ concerns demonstrated usefulness of mental health coordinators equipped with telehealth platforms.
Changing the Conversation about Intellectual and Developmental Disabilities in the Community
A world-famous puppeteer and a community activist bring their firsthand experiences with disabilities to a PCORI-funded project to provide easier access to community venues for children with intellectual and developmental disabilities and their families.
Breaking Down Barriers for Children with Intellectual and Developmental Disabilities and Their Families
How an occupational therapist is helping those with intellectual and developmental disabilities participate in their communities through a PCORI-funded project.
Spreading a Communication Plan to Improve Patient Safety in Hospitals
Engaging parents as active participants in pediatric hospital rounds slashed the rate of medical errors. Now, the research team is working to expand the program from seven to 21 hospitals.
Engagement Awards Teams Ride Momentum to Research Projects
The Eugene Washington PCORI Engagement Awards build communities to participate in patient-centered outcomes research. But three Engagement Awards teams are doing more than participating in research—they are conducting it.
Thriving in School after Childhood Cancer
PCORI awardees provide tools for easing the path to education for survivors.
Engaging with Families Is Key to Addressing Childhood Obesity
Tailored coaching and educational text messages for families, as well as clinical decision support tools for pediatric providers, seemed to help children with obesity and those who are overweight lower their body mass indexes.
Can Telehealth Improve Care?
Telehealth has the potential to provide access to care for a wide variety of populations that are now underserved. Two PCORI-funded studies are using telehealth in different ways to test its potential.
Does a Personalized Approach Help Young People Manage Type 1 Diabetes?
Staying on top of blood sugar levels is of utmost importance for people with type 1 diabetes. For children and teens, can group-based self-management resources tailored to their needs help?
Fighting Weight Gain in Children and Teens Who Take Bipolar Disorder Medications
Can a diabetes drug, along with lifestyle changes, keep off extra pounds and improve quality of life?
Picking the Easier Way to Fight Serious Infections in Children
When children leave the hospital after treatment for a serious infection, doctors sometimes prescribe antibiotics delivered intravenously. But new research suggests oral antibiotics can be as effective, with fewer complications.
Choosing the Right Antibiotic for a Child's Respiratory Infection
A PCORI-funded study compares the outcomes of treatment with targeted versus broader-spectrum bacteria-killing medications.
Helping Families Make a Big Decision -- Fast -- about a Child's Appendicitis
While the traditional treatment is surgery to remove the appendix, antibiotics have emerged as an alternative. When both treatments are medically appropriate, an iPad app might help families quickly decide which option is best for their them.
Between Clinicians and Patients, Trained Community Members May Provide a Key Link
Community health workers and patient navigators work to lower barriers patients may face in receiving care and following treatment plans. PCORI-funded studies are testing whether lay people on clinical teams make a measurable difference.
Medication Choices Based on Data, Not Fear
Researchers are investigating how patients with inflammatory bowel disease weigh treatment benefits and risks—and then are using that information to consider differences between two types of drugs.
From Vaccine Tug-of-War to Parent-Pediatrician Dialogue
Many parents have concerns about vaccines for infants and toddlers, including safety questions; California researchers are surveying parents to learn how to help them make decisions more effectively.
At Teenagers' Checkups, Height, Weight--and Cholesterol?
How do adolescents, and their parents, feel about screenings for high cholesterol—and will screening lead to treatment that improves health?
Genetic Test Results: Putting Parents and Doctors on the Same Page
Parents of children with rare genetic disorders, and their doctors, need genetic information to guide care decisions. A redesigned report for providing information to families and clinicians may improve communication and shared decision making.
Learning from the Success Stories
What are the best approaches for addressing children’s weight problems? Researchers are looking to families for solutions that have succeeded.
In Care Transitions, a Chance to Make or Break Patients' Recovery
Poorly executed transitions between healthcare settings—for example, from hospital to home or a nursing facility—can harm patients and lead to additional hospital visits. PCORI is funding projects to improve transitional care.
