MEDIA ADVISORY: Health equity, COVID-19 research headline PCORI’s 2022 Annual Meeting October 26-27
About Us
- 2023 Annual Meeting
- About PCORI
- The PCORI Strategic Plan
- Governance
- Evaluating Our Work
- PCORI's Advisory Panels
- Procurement Opportunities
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Provide Input
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Past Opportunities to Provide Input
- Stakeholder Views on Components of 'Patient-Centered Value' in Health and Health Care (2023)
- PCORI's Proposed Research Agenda (2021-2022)
- Proposed National Priorities for Health (2021)
- Proposed Principles for the Consideration of the Full Range of Outcomes Data in PCORI-Funded Research (2020)
- Proposed New PCORI Methodology Standards (2018)
- Data Access and Data Sharing Policy: Public Comment (2017)
- Proposed New PCORI Methodology Standards (2017)
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Comment on the Proposed New and Revised PCORI Methodology Standards (2016)
- 1. Standards for Formulating Research Questions
- 10: Standards for Studies of Diagnostic Tests
- 12. Standards on Research Designs Using Clusters
- 13: General Comments on the Proposed Revisions to the PCORI Methodology Standards
- 2: Standards Associated with Patient-Centeredness
- 3: Standards for Data Integrity and Rigorous Analysis
- 4: Standards for Preventing and Handling Missing Data
- 5: Standards for Heterogeneity of Treatment Effects
- 6: Standards for Data Registries
- 7: Standards for Data Networks as Research-Facilitating Structures
- 8. Standards for Causal Inference Methods
- 9. Standards for Adaptive Trial Designs
- Peer-Review Process Comments (2014)
- Draft Methodology Report Public Comment Period (2012)
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Past Opportunities to Provide Input
- Leadership
WASHINGTON, D.C. — Registration is now open for the Patient-Centered Outcomes Research Institute (PCORI)’s 2022 Annual Meeting, a free, virtual event running October 26-27 that brings together patients and caregivers, researchers, healthcare experts, thought leaders, patient advocates and the larger healthcare community to highlight results from PCORI-funded studies and explore how to advance patient-centered outcomes research and comparative clinical effectiveness research.
The dynamic healthcare leaders presenting during the meeting include:
- KEYNOTE: Kirsten Bibbins-Domingo, Ph.D., M.D., MAS, editor-in-chief of the Journal of the American Medical Association, who will share her experience and expertise with research that engages patients and communities, including those traditionally underrepresented in healthcare research
- KEYNOTE: Ashley Valentine, M.Res, co-founder and president, Sick Cells, who will share her experience as a patient advocate in the rare disease community and how this experience shaped her approach to patient engagement and patient community involvement in research
- Nakela L. Cook, M.D, M.P.H., executive director of PCORI, who will discuss PCORI’s newly approved Strategic Plan and as well as moderate a plenary session on health inequities underscored by the COVID-19 pandemic
- Nadine Gracia, M.D., MSCE, president and chief executive officer of Trust for America’s Health, who will present in a discussion about community-partnered strategies in research to address the social determinants of chronic disease
- Mandy Cohen, M.D., M.P.H., executive vice president and chief executive officer of Aledade Care Solutions, who will speak about her experience leading North Carolina’s COVID-19 response as former secretary for the state’s Department of Health and Human Services
Sessions Delve into Health Equity, COVID-19, and Timely Topics of PCORI-Funded Research
Equity in health and healthcare research will be front and center at this year’s virtual convening. One plenary session will highlight the inequitable toll of the COVID-19 pandemic and the efforts made to respond to those inequities, with presenters sharing their experience working with communities and stakeholders to implement COVID-19 interventions amid an evolving understanding of the virus.
A second plenary session will delve into social determinants of health as they relate to chronic disease. Experts will discuss representing a community’s health and equity interests in research; historical, structural and institutional barriers that drive disparities in chronic disease outcomes; and the importance of integrating medical and social services to more fully address patients’ needs.
Tune in to hear these sessions as well as keynote addresses by Bibbins-Domingo and Valentine and 12 breakout sessions covering a range of topics, including strategies to reduce maternal health inequities, updates on PCORI-funded research to improve transitions to adulthood for people with intellectual and developmental disabilities and results from PCORI-funded COVID-related research and engagement projects.
A full list of speakers and the event agenda are available on the 2022 PCORI Annual Meeting website.
PCORI’s Annual Meeting is free and open to all members of the public.
About PCORI
The Patient-Centered Outcomes Research Institute (PCORI) is an independent nonprofit organization authorized by Congress in 2010. Its mission is to fund research that will provide patients, their caregivers and clinicians with the evidence-based information needed to make better-informed healthcare decisions. PCORI is committed to continually seeking input from a broad range of stakeholders to guide its work.
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