WASHINGTON, DC — The Patient-Centered Outcomes Research Institute (PCORI) Board of Governors today approved the selection of 34 people to serve on PCORI’s five multi-stakeholder advisory panels. They also approved chairs and co-chairs for four of the five panels.  The 34 new panel members appointed either nominated themselves or were nominated by third parties.

PCORI’s advisory panels provide advice and recommendations to the Board, PCORI Methodology Committee and staff on planning, developing, implementing and enhancing PCORI’s work to build a portfolio of patient‐centered comparative clinical effectiveness research (CER). Each of the five panels has 10 to 24 members, each of whom is appointed to serve a term of three years.

“We are delighted to welcome our newest panel members. Their knowledge and experience are crucial to helping us review and prioritize the patient-centered CER topics submitted to PCORI and ensuring that our work continues to be scientifically rigorous and patient-centered,” said PCORI Executive Director Nakela L. Cook, MD, MPH. “We also wish to say a sincere thanks to those panel members who have completed their terms. PCORI and its research portfolio have benefitted greatly from their contributions.”

Selecting panelists involved a detailed evaluation of candidates’ expertise, experience and qualifications related to their panel of interest, as well as their ability to contribute to the panel’s tasks and responsibilities. More information about the selection process is available on PCORI’s website.

The panelists approved at today’s meeting, and the stakeholder groups they represent, are the following:

Advisory Panel on Clinical Trials

• (Chair) Catherine Crespi-Chun, PhD, MS, University of California Los Angeles, Fielding School of Public Health — Researchers
• Rowena Dolor, MD, MHS, Duke University Medical Center — Researchers
• Ilana Gareen, MPH, PhD, AB, Brown University School of Public Health — Researchers
• Michael L. Jones, PhD, MBA, RN, Brenau University School of Nursing — Payers
• Larry Kessler, ScD, University of Washington — Researchers
• Susan Lin, ScD, OTR/L, Marymount University — Patients, Caregivers and Patient Advocates
• William Tierney, MD, University of Texas at Austin Dell Medical School — Researchers

Advisory Panel on Rare Diseases

• (Co-chair) Doug Lindsay, Doug Says, LLC — Patients, Caregivers and Patient Advocates
• Sarah Bacon, MS, Patient Advocate — Patients, Caregivers and Patient Advocates
• Danielle Boyce, MPH, National Organization for Rare Disorders — Patients, Caregivers and Patient Advocates
• Mathew Edick, PhD, Michigan Public Health Institute — Patients, Caregivers and Patient Advocates
• Salman Hussain, MPH, Charles River Associates — Industry
• Nancy Rose, MD, American College of Medical Genetics and Genomics — Clinicians
• Laura Tosi, MD, Children’s National Hospital — Clinicians

Advisory Panel on Clinical Effectiveness and Decision Science

• Danielle Bargo, MSc, Flatiron Health — Industry
• Helen M. Beady, EdD, MEd, American Heart Association — Patients, Caregivers and Patient Advocates
• William Bennett, MD, MS, Indiana University School of Medicine — Researchers
• Julie Eller, BS, Arthritis Foundation — Patients, Caregivers and Patient Advocates
• Kari Gali, DNP, APRN, PNP-BC, Cleveland Clinic — Clinicians
• Karen Giuliano, PhD, MBA, RN, University of Massachusetts, Amherst — Researchers
• Samantha Harden, PhD, RYT™ 500, Virginia Polytechnic Institute and State University — Researchers
• Adjoa Adofo Kyerematen, MS, CMMI — Policymakers
• Susan Johnson, MBA, BS, Legacy Healthcare Services — Clinicians
• Joey Mattingly, PharmD, PhD, MBA, University of Maryland, Baltimore — Researchers
• Michael Philbin, PhD, Nouryon — Patients, Caregivers and Patient Advocates
• Rick Rader, MD, Orange Grove Center — Researchers
• Lisa Goldman Rosas, MPH, PhD, Palo Alto Medical Foundation Research Institute — Researchers
• Mychal Weinert, BS, Med-EL Corp. — Patients, Caregivers Stakeholders

Advisory Panel on Healthcare Delivery and Disparities Research

• (Co-chair) Alicia Arbaje, PhD, MD, MPH, Johns Hopkins University — Researchers
• (Co-chair) Jane Kogan, PhD, University of Pittsburgh Medical Center, Insurance Services Division and Center for High-Value Health Care — Payers
• Kristina M. Cordasco, MD, MPH, MSHS, VA Health Services Research, Center for the Study of Healthcare, Innovation, Policy and Practice — Researchers
• Varleisha Gibbs, PhD, OTD, OTR/L, American Occupational Therapy Association, Inc. — Researchers
• Jeffrey Oliver, MBA, Training by Seeds, LLC — Patients, Caregivers and Patient Advocates
• Brandi Ring, MD, FACOG, FAWM, Mile High OB/GYN — Clinicians

Advisory Panel on Patient Engagement

• (Chair) Gwen Darien, National Patient Advocate Foundation — Patients, Caregivers and Patient Advocates
• (Co-chair) Neely Williams, Community Partners’ Network — Patients, Caregivers and Patient Advocates
• Karen L. Fortuna, PhD, MSW, LICSW, Dartmouth College — Researchers
• Margarita Holguin, MPA, Consulting Solutions Team, LLC — Patients, Caregivers and Patient Advocates
• Alma McCormick, Messengers for Health — Patients, Caregivers and Patient Advocates
• Alan Richmond, MSW, Community-Campus Partnerships for Health — Patients, Caregivers and Patient Advocates

The Board also approved $1.2 million for a project in PCORI’s Dissemination and Implementation portfolio, which promotes the uptake of PCORI-funded research findings in health care. This project will work with 12 medical systems across the country to put in place a program, tested in a PCORI-funded CER study, for managing home oxygen therapy for premature infants leaving the hospital. The program allows parents and their doctors to safely reduce the number of days newborns need to stay on oxygen therapy at home.

Details of all projects approved for funding by the Board are on PCORI’s website. All PCORI-funded projects were approved pending a business and programmatic review by PCORI staff and issuance of formal award contracts.

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About PCORI

The Patient-Centered Outcomes Research Institute (PCORI) is an independent nonprofit organization authorized by Congress in 2010. Its mission is to fund research that will provide patients, their caregivers and clinicians with the evidence-based information needed to make better-informed healthcare decisions. PCORI is committed to continually seeking input from a broad range of stakeholders to guide its work.