- 2023 Annual Meeting
- The PCORI Strategic Plan
- Clinical Effectiveness and Decision Science
- Dissemination and Implementation
- Evaluation and Analysis
- Healthcare Delivery and Disparities Research
- PCOR Infrastructure & Innovation
- Our Vision & Mission
- Financial Statements and Reports
- The PCORI Strategic Plan
- Board of Governors
- Methodology Committee
- Authorizing Law
- Evaluating Our Work
- PCORI's Advisory Panels
- Procurement Opportunities
Past Opportunities to Provide Input
- Stakeholder Views on Components of 'Patient-Centered Value' in Health and Health Care (2023)
- PCORI's Proposed Research Agenda (2021-2022)
- Proposed National Priorities for Health (2021)
- Proposed Principles for the Consideration of the Full Range of Outcomes Data in PCORI-Funded Research (2020)
- Proposed New PCORI Methodology Standards (2018)
- Data Access and Data Sharing Policy: Public Comment (2017)
- Proposed New PCORI Methodology Standards (2017)
Comment on the Proposed New and Revised PCORI Methodology Standards (2016)
- 1. Standards for Formulating Research Questions
- 10: Standards for Studies of Diagnostic Tests
- 12. Standards on Research Designs Using Clusters
- 13: General Comments on the Proposed Revisions to the PCORI Methodology Standards
- 2: Standards Associated with Patient-Centeredness
- 3: Standards for Data Integrity and Rigorous Analysis
- 4: Standards for Preventing and Handling Missing Data
- 5: Standards for Heterogeneity of Treatment Effects
- 6: Standards for Data Registries
- 7: Standards for Data Networks as Research-Facilitating Structures
- 8. Standards for Causal Inference Methods
- 9. Standards for Adaptive Trial Designs
- Peer-Review Process Comments (2014)
- Draft Methodology Report Public Comment Period (2012)
- Past Opportunities to Provide Input
WASHINGTON, D.C. (March 26, 2013) – The Patient-Centered Outcomes Research Institute (PCORI) Board of Governors today approved 84 people with a broad range of expertise to serve on PCORI’s first four multi-stakeholder advisory panels.
The panels will advise PCORI on critical research questions for possible funding and how to ensure that PCORI’s work remains patient centered. Each panel has 21 members representing different sectors across the healthcare community, including researchers, clinicians, patients, caregivers, insurers, employers, and industry.
One panel, on Patient Engagement, is designed to advise PCORI on processes and methods to ensure the highest standards for, and a culture of, patient-centeredness in all aspects of its work. Patients make up 60% of the members of that panel. The other three panels correspond to three of PCORI’s National Priorities for Research: Assessment of Prevention, Diagnosis, and Treatment Options; Improving Healthcare Systems; and Addressing Disparities. These panels will help PCORI identify and prioritize research questions in their respective areas and provide ongoing feedback on evaluating and disseminating resulting research.
“Our advisory panels will help us identify and prioritize the questions that are important to patients, caregivers clinicians and others, and also help us evaluate all of our research programs,” said Anne Beal, MD, MPH, PCORI’s Deputy Executive Director, Chief Officer for Engagement and Chief Operating Officer. “The individuals we’ve invited to serve are representative of our diverse stakeholder community. Each contributes valuable perspectives and expertise to advance our mission to fund research that provides patients and those who care for them the information they need to make better-informed decisions.”
PCORI received 1,295 applications, from 1,021 individuals, for panel membership (some people applied to be on more than one panel). PCORI staff thoroughly reviewed each application and evaluated candidates based on their personal experience, qualifications, and ability to represent their respective stakeholder communities. More information on PCORI’s process for reviewing and recommending advisory panel will be made available on the PCORI website.
PCORI’s authorizing legislation allows the institute to appoint permanent or ad hoc expert advisory panels to assist in identifying research priorities and establishing its research project agenda. The legislation also states that advisory panels must include patients, clinicians, researchers, experts in health services delivery and evidence-based medicine who have experience in a relevant topic, as well as industry representatives as appropriate. PCORI plans to establish additional advisory panels over time, including, as needed, those related to Randomized Controlled Trials and Rare Diseases.
The panels are not policy-making bodies but are considered critical to PCORI’s ongoing effort to ensure that stakeholder input helps to refine its research portfolio and other activities.
Individual panel members have been notified of their appointment to their respective advisory panel and have until March 28 to accept their invitations. If needed, alternate members will be selected from a list also approved by the PCORI Board today. PCORI will announce the final list of advisory panel members on April 1. The panels will convene in Alexandria, Va., April 19-20, for their orientation and first meetings.
Charters for each panel, including the scope of work for panelists, are available on the PCORI website. Advisory panel members are appointed for a one-year term, with the opportunity for reappointment for a maximum of two terms.
PCORI Board meeting on advisory panels: http://www.pcori.org/events/special-board-of-governors-teleconferencewebinar-on-advisory-panels/
The Patient-Centered Outcomes Research Institute (PCORI) is an independent, non-profit organization authorized by Congress in 2010. Its mission is to fund research that will provide patients, their caregivers and clinicians with the evidence-based information needed to make better-informed healthcare decisions. PCORI is committed to continuously seeking input from a broad range of stakeholders to guide its work.
The Patient-Centered Outcomes Research Institute (PCORI) is an independent nonprofit organization authorized by Congress in 2010. Its mission is to fund research that will provide patients, their caregivers and clinicians with the evidence-based information needed to make better-informed healthcare decisions. PCORI is committed to continually seeking input from a broad range of stakeholders to guide its work.
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