Adrian Gropper, MD, is the CTO of Patient Privacy Rights, a national organization representing 10.3 million patients and among the foremost open data advocates in the country. He participated in the creation of Blue Button at Markle Foundation where he contributed patient-authorization components to the best practice. In the Direct Project, he led the move to ensure that patients are treated as first-class citizens and preserve key privacy privileges such as HIPAA’s “known to the practice.” He’s been a core contributor to Blue Button Plus and is active in promoting open and patient-centered data policy in numerous comments to federal regulations. He is significantly involved in other patient-empowerment and access work at NSTIC/IDESG where he is the elected Privacy and Civil Liberties delegate to the Management Council and also vice-chair of the Healthcare Workgroup. This work is essential to solving critical problems of patient matching, cybersecurity, transparency, access, and delegation to family caregivers. He also works at the state level in Massachusetts on enhancing physician-patient trust in his capacity as a member of MA Medical Society Committee on Information technology and the Task Force on Physician Choice and Mandates.


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