A headshot of Alexis Snyder

Alexis Snyder is a patient family and community engagement specialist. As a parent of a young adult with complex medical needs, she has a unique perspective on the healthcare delivery and systems of care available to patients with medical complexity and rare disease. Snyder has bachelor’s degrees in psychology and sociology, and her background is in health care, recreation therapy, patient rights, advocacy and ethics. She first became involved with PCORI while co-chair of the Patient and Family Advisory Council of Franciscan Children’s in Brighton, Massachusetts. Through her participation as a parent research partner on the PCORI Engagement Award project Franciscan Helps Families Connect, Snyder used parent-generated data to develop a voice for parents of children with medical complexity to identify barriers and share experiences in obtaining health care. As a co-investigator on the PCORI Engagement Award project Boston BRI…DGE, she convened, organized and supported capacity of stakeholders to become engaged in research partnerships, and facilitated relationships between stakeholders and researchers and academic institutions for research equity and impact. She chose to become a PCORI ambassador because she is passionate about patient-centered comparative clinical effectiveness research (CER) and PCORI’s mission. She is an advisor to several regional and national agencies that include the National Quality Forum, the Agency for Healthcare Research and Quality, Academy Health and Centers for Medicare and Medicaid Services, and a past member PCORI’s Advisory Panel on Healthcare Delivery and Disparities. 

Snyder enjoys educating patients, caregivers, physicians and researchers about PCORI through presentations as well as workshops about authentic engagement in CER. She has been engaged with PCORI since 2014 and became a PCORI ambassador in 2017. 

Involvement with PCORI

Research Award: Measuring co-creation during the engagement process in research: A pathway forward – Patient Partner 
Engagement Award: Franciscan Helps Families Connect (FHFC) – Parent Partner
Engagement Award : 2016 Massachusetts PFAC Conference – Advisor
Engagement Award: Boston BRI...DGE – Advisory Board Member
Engagement Award: Boston BRI…DGE 2018, Engagement Specialist/Co-Investigator
Pipeline to Proposal: Healthy Aging in Place for Racial/Ethnic Minority Underserved Populations – Advisor
PCORI Merit Reviewer
Peer Reviewer and Editorial Board Member
PCOR Translation Center Reviewer
Healthcare Horizon Scanning Reviewer
Advisory Panel on Healthcare Delivery and Disparities Research (2016-2019)
PCORI 2019 and 2020 Annual Meeting Steering Committee Member
PCORI 2021 Annual Meeting Panel Presenter: Approaches to New Technologies: Keeping up with Health Care Innovations

Ambassador Interests

Health Conditions Health Conditions These are the broad terms we use to categorize our funded research studies; specific diseases or conditions are included within the appropriate larger category. Note: not all of our funded projects focus on a single disease or condition; some touch on multiple diseases or conditions, research methods, or broader health system interventions. Such projects won’t be listed by a primary disease/condition and so won’t appear if you use this filter tool to find them. View Glossary
Populations Populations PCORI is interested in research that seeks to better understand how different clinical and health system options work for different people. These populations are frequently studied in our portfolio or identified as being of interest by our stakeholders. View Glossary
Stakeholder Types
State State The state where the project originates, or where the primary institution or organization is located. View Glossary

Send a request to connect with Alexis Snyder

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