A Twist of Fate-ATS - Board Member Arkansas Children's Virtual Family Advisory - Member
Andrea Taylor’s experience with PCORI began in 2015 while attending the National Organization for Rare Disorders conference. From there, she completed the training offered by the National Organization for Rare Disorders (NORD) and successfully applied for her organization’s first PCORI Engagement Award. She assisted two other rare patient groups to obtain their Engagement Awards, as well.finished. Andrea is interested to learn more about PCORI, patient-centered outcomes research (PCOR), and comparative clinical effectiveness research (CER). Having found in her own experience that there is not much support for people living with rare conditions, Andrea has been willing to help anyone she can to obtain theirs. She has learned more about how to better engage patients and stakeholders through her work with PCORI and is motivated to give back to others.
Involvement with PCORI
Engagement Awards: ATS Patient Empowerment and Knowledge Symposium - Principal Investigator (PI)
Engagement Awards: Arterial Turtuosity Syndrome PCOR/CER Summit Series - Principal Investigator (PI)