Ambassador

Cher Bork

Alagille Syndrome Alliance – Staff Member

Years Involved in Patient Centered Research: 0-2 years
State: Tennessee

As the Executive Director of the Alagille Syndrome Alliance, Cher Bork has been able to lead or co-lead research initiatives. Together with the organization’s scientific lead, she has helped facilitate the research topics for the group’s Scientific Meeting. She has compiled a patient survey according to the Eugene Washington PCORI Engagement Award guidelines. Prior to this, she has compiled several other research-specific survey questionnaires for patients, analyzed this data, and prioritized the audiences receiving the results. She has also assisted with recruiting participants for research initiatives.

Involvement with PCORI

Engagement Award: ALGSA 2019 Symposium and Scientific Meeting – Project Lead

Ambassador Interests

Health Conditions Health Conditions These are the broad terms we use to categorize our funded research studies; specific diseases or conditions are included within the appropriate larger category. Note: not all of our funded projects focus on a single disease or condition; some touch on multiple diseases or conditions, research methods, or broader health system interventions. Such projects won’t be listed by a primary disease/condition and so won’t appear if you use this filter tool to find them. View Glossary
Populations Populations PCORI is interested in research that seeks to better understand how different clinical and health system options work for different people. These populations are frequently studied in our portfolio or identified as being of interest by our stakeholders. View Glossary
Research Phases
State State The state where the project originates, or where the primary institution or organization is located. View Glossary

Send a request to connect with Cher Bork

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