Alagille Syndrome Alliance – Staff Member
As the Executive Director of the Alagille Syndrome Alliance, Cher Bork has been able to lead or co-lead research initiatives. Together with the organization’s scientific lead, she has helped facilitate the research topics for the group’s Scientific Meeting. She has compiled a patient survey according to the Eugene Washington PCORI Engagement Award guidelines. Prior to this, she has compiled several other research-specific survey questionnaires for patients, analyzed this data, and prioritized the audiences receiving the results. She has also assisted with recruiting participants for research initiatives.
Involvement with PCORI
Engagement Award: ALGSA 2019 Symposium and Scientific Meeting – Project Lead