Representing: Patients, Caregiver Advocates, and Advocacy Organizations
Cole Jackson is the CEO of MedMentor, a mentoring organization for youth with chronic/complex conditions. Through the organization, mentors work alongside patients to create meaningful, enduring relationships while providing ongoing social, emotional, and self-management support. Thus, patients develop a sense of meaning and purpose in life. This newly acquired sense of personal fulfillment motivates patients to practice self-care and engage in research and coproduction activities. Jackson’s research focuses on the use of CER to discover the best solutions for increasing patient activation and engagement in managing personal health and care. He has spent seven years in quality improvement (QI) research at Cincinnati Children’s, where he was responsible for engaging patients in advocacy, research, and self-management projects. As an Ambassador, he intends to engage in advocacy and research activities, particularly for the advancement of patient engagement in research. He is also interested in participating as an investigator and/or co-investigator on research projects.