Lowe Syndrome Association - Board Member
Lowe Syndrome Foundation - Board Member
Montefiore Medical Center - Staff Member
Corina DeGori is a parent of a child with a rare disease. She is a nurse who works for an institution with a major focus on research and has participated in some of the hospital’s research programs. She would like to become more involved in rare disease research beyond the condition that affects her son, as she has learned how much the different rare disease communities have in common.