Danielle Dong, ScM, CGC

Boston, Massachusetts

Scientific Advocacy Lead, Global Medical Affairs Rare Disease, Sanofi

Representing: Industry
Term Ends July 2025

Danielle is the Scientific Advocacy Lead in Global Medical Affairs, Rare Disease at Sanofi with a focus on real-world evidence in rare disease. She also leads patient initiatives for the lysosomal storage disease registries, advocating for and with the rare community within the real-world data ecosystem. She previously worked in both local and global operations of the registries. Danielle is a genetic counselor who worked at the University of Virginia in the Department of Pediatrics, Medical Genetics Division providing genetic counseling to patients and families and co-coordinated the Lysosomal Storage Disease (LSD) Program.

She was a caregiver for her mother while she was living with Alzheimer’s disease and has participated in related Alzheimer’s clinical research. Danielle’s background of academic, industry, and advocacy roles informs and supports her belief that by listening to patients and families, the health care journey for all people will be improved. Danielle graduated with a BS in Biology from the University of North Carolina at Chapel Hill and received her Master of Science in Genetic Counseling from Johns Hopkins University/National Institutes of Health.