Pitman, New Jersey
Executive Director, Histiocytosis Association
Representing: Patients, Caregivers, and Patient Advocates
Term Ends August 2024
Deanna Fournier is the Executive Director of the Histiocytosis Association. Fournier’s passion and dedication stems from her own diagnosis with Langerhans cell histiocytosis at the age of 6, and her lifetime involvement with the organization.
Fournier brings her experience as a former Director of Business Development, Manager of Global Learning & Development, Wilderness EMT, and Internationally Certified Health Coach to the association in addition to her knowledge and expertise in the medical and rare disease space. Fournier served on the association's Board of Trustees for two years prior to taking on the role of Executive Director.
Fournier has the unique position of being a patient, an organization leader, and an advocate for wellness and health. Fournier is excited and motivated to help PCORI by leveraging her unique perspective to help ensure patients and families have the resources they need to make informed decisions for their health care and to support research that seeks to improve patient outcomes.
Conflicts of Interest
As of September 7, 2021:
- Advisory Panel Member
- Advisory Panel on Rare Disease