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St. Louis, MO
Speaker and Personal Medical Consultant, Founder - Doug Says LLC
Represented: Patients, Caregivers, and Patient Advocates
Former Panel Co-Chair
Term ended August 2022
Doug Lindsay became ill at age 21 and spent the next 11 years home- and bedbound until he figured out what was wrong, developed novel treatments to keep his rare autonomic-adrenal condition at bay, and eventually developed the innovative surgery used to treat him.
During Lindsay’s 14-year medical odyssey, he worked with 35 senior faculty at 28 institutions, developed new uses for five existing prescription drugs, won a national first court case protecting patients’ rights, and developed the concept for the two successful, innovative adrenal surgeries used to treat his case.
Now, Lindsay is a nationally recognized speaker on the role of hope and character in innovation and in life. He is a Community Advisory Board member for Washington University’s Institute of Clinical and Translational Sciences and Institute for Public Health.
He also provides an in-depth personal medical consultant service to a small number of rare disease and complex condition patients who’ve found themselves trapped in the medical system.
Lindsay served on the Advisory Panel on Rare Disease from August 2019 to August 2022.