Gabriella Balasa

Gabriella Balasa is a patient advocate, consultant, and a person living with cystic fibrosis. She was diagnosed at 18 months old and has experienced countless hospitalizations since being a child. She has committed her time to empowering patients and advancing research and healthcare strategies through connections with researchers, pharmaceutical companies and patient organizations. 

Having a biology background, Balasa has become an advocate for the development of novel therapies for the treatment of antibiotic-resistant infections including phage therapy, as well as speaking publicly at conferences and meetings and to companies about the value of the patient voice in research. She also has a passion for writing, distilling clinical information for patient communities and sharing about the hardships yet triumph that comes with living with a chronic illness. 

She was recently recognized as a 2022 Health Union Social Health Award winner for Healthcare Collaborator and serves on research committees with nonprofit organizations such as the Cystic Fibrosis Foundation. She serves as part of the PCORI Advisory Panel on Rare Disease and was motivated to be part of the PCORI Ambassador Program to support the engagement of patients for active participants in health care by providing empowerment and education for collaboration with stakeholders and to improve disease outcomes. 

Involvement with PCORI

Working Group Member - Engagement Award Project: Building Research Partnerships to Improve Sexual and Reproductive Health for Women with CF (Cystic Fibrosis) – Project Investigator: Emily Godfrey, MD, MPH 

Advisory Panel on Rare Disease Member

Ambassador Interests

Health Conditions Health Conditions These are the broad terms we use to categorize our funded research studies; specific diseases or conditions are included within the appropriate larger category. Note: not all of our funded projects focus on a single disease or condition; some touch on multiple diseases or conditions, research methods, or broader health system interventions. Such projects won’t be listed by a primary disease/condition and so won’t appear if you use this filter tool to find them. View Glossary
Populations Populations PCORI is interested in research that seeks to better understand how different clinical and health system options work for different people. These populations are frequently studied in our portfolio or identified as being of interest by our stakeholders. View Glossary
Stakeholder Types
State State The state where the project originates, or where the primary institution or organization is located. View Glossary

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