Ellen Schultz has led work to develop the practice of patient-centered measurement, which means partnering with patients and caregivers to decide what gets measured in research, how it is measured , and how the results are reported and utilized. Ellen has worked directly on PCORI-funded projects, including recently serving on the Project Advisory Group for the Engagement Measures project, where she helped the team develop use cases for how researchers can use measures to build the engagement science evidence base. In a previous role, she served as a subject matter expert and quality assurance reviewer within PCORI’s Translation Center, where she reviewed summaries and abstracts (both public and professional versions) for accuracy and plain language best practices among a wide variety of PCORI-funded methodology, research, dissemination, and implementation, and PCORnet projects. Partnering with patients and caregivers, and convening stakeholders is an integral part of Ellen’s work. When overseeing a series of pilot projects, she partnered with patient and caregiver advocates throughout, from developing a funding announcement and selecting awardees to convening a learning community and synthesizing lessons learned. Today as an independent consultant, she teaches teams how to partner with patients and caregivers throughout measurement and research. Ellen brings a unique perspective as a health services researcher with journalism, rather than clinical or PhD, training (she has a Master’s of Science degree in life sciences communication from the University of Wisconsin-Madison and bachelor’s degrees in biology and French from Washington University in St. Louis). As an ambassador, Ellen will offer critical thinking and practical experience about conducting PCOR in ways that ultimately benefit patients and caregivers while building evidence that meets the needs of the stakeholders who will put the evidence into practice.

Involvement with PCORI

Reviewer - PCORnet: Patient-Centered Outcomes Research Translation Center – Project Lead: Maureen Maurer

Ambassador Interests

Health Conditions Health Conditions These are the broad terms we use to categorize our funded research studies; specific diseases or conditions are included within the appropriate larger category. Note: not all of our funded projects focus on a single disease or condition; some touch on multiple diseases or conditions, research methods, or broader health system interventions. Such projects won’t be listed by a primary disease/condition and so won’t appear if you use this filter tool to find them. View Glossary
Stakeholder Types
State State The state where the project originates, or where the primary institution or organization is located. View Glossary

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