Ambassador

Jane Perlmutter

National Cancer Institute (NCI) – Volunteer
American Society of Clinical Oncology (ASCO) – Volunteer
Translational Breast Cancer Research Consortium (TBCRC) – Volunteer

Years Involved in Patient Centered Research: 10+ years
State: Michigan

Jane Perlmutter, PhD, MBA, is a long-term cancer survivor and active advocate. While her advocacy is largely rooted in her own experiences, it is also informed by her formal training in cognitive psychology and experimental methods, computer and information science, and business. Her career experiences include many years in academia, not-for-profit research and development, corporate senior management, and independent consulting. She currently devotes most of her time to advocacy, specifically on clinical trials. She aims to ensure that the patient voice is considered in the selection of research questions, that the designs of trial protocols are sensitive to patient issues, and she encourages innovation to increase the speed of developing new treatments. She is especially interested in innovative trial designs that can speed new treatments to patients who need them. As such, she serves on the steering committees and is lead advocate of the I-SPY 2 and TAPUR trials, two groundbreaking trials. Perlmutter is also a member of the National Cancer Institute’s Breast Cancer Steering Committee, the Alliance Cancer Cooperative Group, and the Translational Breast Cancer Research Consortium. In recent years, Perlmutter’s advocacy has expanded to health research policy. For example, she has been involved with the Clinical Trials Transformation Initiative, Friends of Cancer Research, the Reagan-Udall Foundation, the Multi-Regional Clinical Trials Center, and she has served on a number of National Cancer Institute and National Academy of Science committees. She is also the past chair of the PCORI Patient Engagement Advisory Panel.

Involvement with PCORI

Research: Post-Treatment Surveillance in Breast Cancer: Bringing CER to the Alliance – Advisory Member
Research: Development and Evaluation of a Patient-Centered Approach to Assess Quality of Care: Patient-Reported Outcomes-based Performance Measures (PRO-PMs) – Advisory Member
PCORI Merit Reviewer
PCORI Peer Reviewer
Advisory Panel on Patient Engagement

Ambassador Interests

Health Conditions Health Conditions These are the broad terms we use to categorize our funded research studies; specific diseases or conditions are included within the appropriate larger category. Note: not all of our funded projects focus on a single disease or condition; some touch on multiple diseases or conditions, research methods, or broader health system interventions. Such projects won’t be listed by a primary disease/condition and so won’t appear if you use this filter tool to find them. View Glossary
Research Phases
State State The state where the project originates, or where the primary institution or organization is located. View Glossary

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