Arthritis Power – Patient Governor Advisor
NYU School of Medicine – Patient Representative
Janet Austin, PhD, is an educator, speaker, blogger, author, and advocate with professional experience in an academic medical center, nonprofit organization, and government. She served as the Director of the Office of Communications and Public Liaison for the National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS) at the National Institutes of Health (NIH) from 1999 to 2011. Prior to joining NIAMS, Austin was the Vice President of the American Juvenile Arthritis Organization and the Arthritis Foundation National Office in Atlanta, Georgia. She earned a Bachelor of Science in special education from Iowa State University, a Master of Science in rehabilitation counseling, and a doctorate in health education and promotion from the University of Alabama. In 2011, Austin retired from government service due to longstanding rheumatoid arthritis and heart disease. She left Bethesda, Maryland to return to her hometown of Birmingham, Alabama. Austin is currently pursuing her desire to connect with women challenged by the daily struggles associated with chronic disease and pain by founding the Janet S. Austin Chronic Disease Foundation, a national nonprofit 501(c)3 organization. The foundation’s mission is to provide resources and support to enhance functional, physical, relational, and spiritual capabilities of those in pain from chronic diseases.
Involvement with PCORI
Engagement Award: Research Agenda for Translating Disease Specific Care to Patient Goals-Directed Care for Prople with Multiple Chronic Conditions – Advisory Member
Research: Hartford-PCORI Collaboration to Align Care for Complex Older Adults initiative – Advisory Member
Advisory Panel on Healthcare Delivery and Disparities Research