Johanna Bergan serves as the Executive Director of a youth- and consumer-run organization working to improve youth-serving systems including mental health, child welfare, and juvenile justice systems. A key part of the portfolio she leads is a research agenda, led by young people with lived experience. This effort has frequently connected Johanna’s team to PCORI-funded research efforts where they have participated in research design, recruitment, and support of participation of young people and their families in research, analysis of data from a lived-experience lens, and participation in publication and dissemination activities. They have partnered closely with Rutgers University in PCORI-funded research and served as effective recruitment and dissemination partners with other PCORI-funded efforts. Johanna’s professional experience is in nonprofit management and youth engagement. She is an advocate for increasing lived experience in research and evaluation and believes the world will only improve by listening to those that have lived in the spaces that researchers are working to improve. She is interested in being connected to a network of individuals supportive of the PCORI vision and amplifying opportunities for young people to connect to research pathways.

Ambassador Interests

Health Conditions Health Conditions These are the broad terms we use to categorize our funded research studies; specific diseases or conditions are included within the appropriate larger category. Note: not all of our funded projects focus on a single disease or condition; some touch on multiple diseases or conditions, research methods, or broader health system interventions. Such projects won’t be listed by a primary disease/condition and so won’t appear if you use this filter tool to find them. View Glossary
Populations Populations PCORI is interested in research that seeks to better understand how different clinical and health system options work for different people. These populations are frequently studied in our portfolio or identified as being of interest by our stakeholders. View Glossary
State State The state where the project originates, or where the primary institution or organization is located. View Glossary

Send a request to connect with Johanna Bergan

PCORI would like to facilitate connections among PCORI Ambassadors and between PCORI Ambassadors and other stakeholders to partner on research projects, engagement initiatives, speaking opportunities and other patient-centered research activities. If you would like to connect with the above-listed PCORI Ambassador, please send a request using the form below.
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