Ambassador

Julie Powers

Mesothelioma Applied Research Foundation - Executive Director
Lupus Foundation of America - Volunteer

Years Involved in Patient Centered Research: 10+ years
State: Maryland

Julie Powers works to provide direct service to patients, families, and caregivers with bone marrow failure diseases, helping them to understand current research into curative treatments for these very rare diseases. She spends much of her time developing educational tools and implementing programs that help patients understand their role in research and its potential impact on their lives. As a longtime participant in clinical trials herself, she has a unique perspective and position, between research and treatment. As a professional patient advocate and educator, she is motivated to bring her personal and professional lives together to help researchers better prioritize the needs of patients while still maintaining academic rigor and research standards. 

Ambassador Interests

Health Conditions Health Conditions These are the broad terms we use to categorize our funded research studies; specific diseases or conditions are included within the appropriate larger category. Note: not all of our funded projects focus on a single disease or condition; some touch on multiple diseases or conditions, research methods, or broader health system interventions. Such projects won’t be listed by a primary disease/condition and so won’t appear if you use this filter tool to find them. View Glossary
Populations Populations PCORI is interested in research that seeks to better understand how different clinical and health system options work for different people. These populations are frequently studied in our portfolio or identified as being of interest by our stakeholders. View Glossary
Research Phases
State State The state where the project originates, or where the primary institution or organization is located. View Glossary

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