Kristine Carandang is clinically trained as an occupational therapist, and academically trained as a qualitative researcher and implementation scientist who conducts studies primarily with adolescents and young adults with chronic conditions. Her career is fueled by her experiences as a patient diagnosed young with rheumatoid arthritis. From 2016-2018, she was honored to serve as first co-investigator, then co-lead of a PCORI Pipeline to Proposal Project that focused on engaging young people with chronic conditions to develop research priorities that reflected their experiences and preferences. With a different team, she expanded on the methods of that initial project and applied for a Eugene Washington Engagement Award, which they were awarded in January 2021. As part of this project, Kristine and her team have convened a group of young people between the ages of 16 to 22 to become trained as research partners and will spend the next year building an accessible platform to disseminate research and convey the importance of research to their peers. Kristine has also utilized her professional training and personal experiences as a patient expert to several projects that have stemmed out of ArthritisPower and the work of the Global Healthy Living Foundation. As a PCORI Ambassador, Kristine is motivated to develop more experience translating the research projects into language for the lay community and disseminating these messages in a way that would ultimately be most useful to patients. She is interested in learning how to better use her patient identity to best serve her own peers—especially young to middle-aged minority women with autoimmune conditions.
- Data Analysis
- Prioritizing and/or refining the research topic or agenda
- Prioritizing and/or refining research questions
- Data Collection
- Participant Recruitment/Retention
- Determining the research outcomes that will be measured
- Determining the intervention(s) provided to research subjects