As the mother of three sons living with mitochondrial disease, Libby Hoy has 20 years of experience navigating the healthcare system. Hoy began volunteering as a parent mentor in 1995 and has been working to improve health systems and empower patients and families to be active partners in care ever since. In her role as the first Family Advocate at Miller Children’s Hospital, she developed the Parent Advisory Board and created the structure for the long-term integration of the patient and family voice within the organization. Hoy has presented at multiple national and international conferences on subjects related to patient- and family-centered care (PFCC) practice. As a consultant, Hoy strives to share the evidence, practices, and methods that support PFCC culture in healthcare organizations.

In 2010, Hoy founded PFCC Partners to create a community of patients, families, providers, and healthcare organizations committed to improvement in the quality, safety, experience, and delivery of health care.

In these and all efforts, Hoy strives to build the infrastructure and capacity for healthcare organizations to engage all patients and families, from the bedside to the boardroom.

Involvement with PCORI

Engagement Award: A Research Agenda for Translating Disease Specific Care to Patient Goals-Directed Care for People with Multiple Chronic Conditions – Co-Principal Investigator
Research: Comparing Three Approaches to Improve Communication Between Patients and Their Doctors – Advisory Member
PCORI Merit Reviewer
PCORI Peer Reviewer
Advisory Panel on Patient Engagement

Ambassador Interests

Health Conditions Health Conditions These are the broad terms we use to categorize our funded research studies; specific diseases or conditions are included within the appropriate larger category. Note: not all of our funded projects focus on a single disease or condition; some touch on multiple diseases or conditions, research methods, or broader health system interventions. Such projects won’t be listed by a primary disease/condition and so won’t appear if you use this filter tool to find them. View Glossary
Populations Populations PCORI is interested in research that seeks to better understand how different clinical and health system options work for different people. These populations are frequently studied in our portfolio or identified as being of interest by our stakeholders. View Glossary
State State The state where the project originates, or where the primary institution or organization is located. View Glossary

Send a request to connect with Libby Hoy

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