Fort Wayne, IN

Registered Nurse at Pacific Quest and Bay Clinic - Hawaii

Represented: Patients, Caregivers, and Patient Advocates
Term ends April 2018

Lisa Heral, RNBA, CCRC, has personally been touched by the information disparities that exist for patients who have rare disorders; her son was diagnosed at age 14 with a rare orthopedic condition. Her interests are synonymous with PCORI’s vision to ensure patients have the information they need to make informed healthcare decisions. In her previous role as a research informatics nurse at the Parkview-Mirro Research Center, Heral managed several projects which engage patients in research to improve care through utilization of informatics science. Heral currently serves on several committees to promote the harmonization of data to accelerate research for rare disorders, including NIH Global Rare Disease Repository Steering Committee, NIH funded PhenX Toolkit Working Group, and the Advocacy Panel for the RUDY Project in the United Kingdom/University of Oxford, England. Heral also serves on the Steering Committee for the the Fibrous Dysplasia Foundation Registry Steering Committee partnered with the National Organization of Rare Diseases (NORD).

Heral served as a member of the Advisory Panel on Rare Disease from Fall 2015 - Spring 2018.

Conflicts of Interest

As of October 27, 2016

  • None

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